Transition to self-management after pediatric heart transplant.
Context—Little is known about adolescent transition to self-management after heart transplant. This gap in knowledge is critically important because the consequences of poor self-management are costly and life-threatening, often resulting in nonadherence, rejection, repeated hospitalizations, and po...
| Published in: | Progress in Transplantation Vol. 24; no. 3; pp. 226 - 234 |
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| Main Authors: | , , , , , , , , , |
| Format: | research tables/charts Journal Article |
| Published: |
Sage Publications Inc.
Sep2014
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=103884922&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 103884922 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15269248 G4M jtl: Progress in Transplantation issn: 15269248 maglogo: N pubinfo: dt: Sep2014 vid: 24 iid: 3 pid: 20732 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 103884922 97725416 10.7182/pit2014911 NLM25193722 103884922 ppf: 226 ppct: 8 formats: fmt: @attributes: type: P tig: atl: Transition to self-management after pediatric heart transplant. aug: au: Meaux, Julie B. Green, Angela Nelson, Mary Kathryn Huett, Amy Boateng, Beatrice Pye, Sherry Schmid, Barbara Berg, Alex LaPorte, Kelci Riley, Linda affil: University of Central Arkansas, Conway sug: subj: Heart Transplantation Adolescent Health Transitional Care Self Care Human Qualitative Studies Descriptive Research Focus Groups Purposive Sample Adolescence Young Adult Parents Descriptive Statistics Thematic Analysis Female Male Pilot Studies Funding Source Adolescent: 13-18 years Female Male ab: Context—Little is known about adolescent transition to self-management after heart transplant. This gap in knowledge is critically important because the consequences of poor self-management are costly and life-threatening, often resulting in nonadherence, rejection, repeated hospitalizations, and poor quality of life. Objective—To explore how adolescents and parents perceive their roles in self-management, and how adolescents integrate self-management into their daily lives and navigate the transition from parent-dominated to self-management. Design—Qualitative descriptive design, using online focus groups. Setting—Online focus groups using itracks, an online qualitative software program. Participants—A purposive sample of 4 adolescents, 13 to 21 years old, who were at least 6 months posttransplant, and of 6 parents of adolescent heart transplant recipients. Results—Several parallel themes emerged from the parent and adolescent online focus groups. Managing medications was the predominant theme for both parents and adolescents. For the remaining themes, parents and adolescents expressed similar ideas that were categorized into parallel themes, which included staying on top of things/becoming independent, letting them be normal/being normal, and worries and stressors. Conclusions—The transition to self-management after heart transplant was a clear goal for both parents and adolescents. The transition is a shared responsibility between parents and adolescents with a gradual shift from parent-directed to self-management. The process of transition was not linear or smooth, and in several instances, parents described efforts to transfer responsibility to the adolescent only to take it back when complications arose. Additional research with a larger sample is needed in order to fully understand adolescent heart transplant recipients’ transition to self-management. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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