Integrated Image Data and Medical Record Management for Rare Disease Registries. A General Framework and its Instantiation to the German Calciphylaxis Registry.

Especially for investigator-initiated research at universities and academic institutions, Internet-based rare disease registries (RDR) are required that integrate electronic data capture (EDC) with automatic image analysis or manual image annotation. We propose a modular framework merging alpha-nume...

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Bibliographic Details

Published in:	Journal of Digital Imaging Vol. 27; no. 6; pp. 702 - 714
Main Authors:	Deserno, Thomas, Haak, Daniel, Brandenburg, Vincent, Deserno, Verena, Classen, Christoph, Specht, Paula
Format:	pictorial tables/charts Journal Article
Published:	Springer Nature Dec2014
Online Access:	View this record in EBSCOhost