Caregiver burden, quality of life and walking ability in different disability levels of multiple sclerosis.

BACKGROUND: The caregivers of Multiple Sclerosis (MS) individuals are usually burdened with a wide range of MS-related caregiving tasks which may result in damages of their daily life and quality of life (QOL). OBJECTIVES: This study was designed to compare according to the disability level (1) the...

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Publicado en:NeuroRehabilitation Vol. 34; no. 2; pp. 313 - 322
Autores principales: Ertekin, Özge, Özakbaş, Serkan, İdiman, Egemen
Formato: research tables/charts Journal Article
Publicado: Sage Publications Inc. 2014
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Caregiver burden, quality of life and walking ability in different disability levels of multiple sclerosis.
      aug:
        au:
          Ertekin, Özge
          Özakbaş, Serkan
          İdiman, Egemen
        affil: Department of Physiotherapy and Rehabilitation, Sifa University Faculty of Health Sciences, Izmir, Turkey
      sug:
        subj:
          Caregiver Burden
          Quality of Life
          Walking
          Persons with Disabilities
          Multiple Sclerosis
          Human
          Academic Medical Centers
          Outpatients
          Turkiye
          Scales
          Data Analysis Software
          Mann-Whitney U Test
          Pearson's Correlation Coefficient
          Adult
          Middle Age
          Aged
          Descriptive Statistics
          Male
          Female
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: BACKGROUND: The caregivers of Multiple Sclerosis (MS) individuals are usually burdened with a wide range of MS-related caregiving tasks which may result in damages of their daily life and quality of life (QOL). OBJECTIVES: This study was designed to compare according to the disability level (1) the walking ability, quality of life (QOL), and disease impact of the MS patients (2) and the burden, QOL, self-efficacy and life satisfaction of their caregivers; (3) to determine the relationship between these outcome results, disease duration and caregivers' age. METHODS: 772 MS patients were recruited, 47 MS patients and their 47 caregivers finished the study. Disability, walking ability, QOL, disease impact of the MS participants; the burden, QOL, self-efficacy, life satisfaction of the caregivers were evaluated. RESULTS: MS Patients with higher disability had significantly worse scores on the MSWS-12, MUSIQOL, MSIS-29, and PDSS (p < 0.01). The caregivers facing with higher disability had significantly worse scores on CBI and CAREQOL (p < 0.01). CONCLUSIONS: The impairments on disability level, walking and QOL of MS patients were related to OQL declines and increased burden of their caregivers. Therefore, it may be important to provide acceptable education and support strategies with individual intervention while defining the needs and goals of the MS patients and their caregivers to improve the rehabilitation success.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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