The lived experiences of the Sikh population of south east England when caring for a dying relative at home.
Background: Few ethnic minorities access specialist palliative care (SPC) services when caring for a dying relative at home. Objective: This project aimed to explore and understand the experiences of the Sikh population of south east England when caring for a dying relative at home without support f...
| Publicado en: | International Journal of Palliative Nursing Vol. 20; no. 4; pp. 179 - 187 |
|---|---|
| Autor principal: | |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Mark Allen Holdings Limited
Apr2014
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=103937726&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 103937726 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13576321 GHF jtl: International Journal of Palliative Nursing issn: 13576321 maglogo: N pubinfo: dt: Apr2014 vid: 20 iid: 4 pid: 11383 pub: Mark Allen Holdings Limited artinfo: ui: 103937726 95754027 10.12968/ijpn.2014.20.4.179 NLM24763326 103937726 ppf: 179 ppct: 8 formats: fmt: @attributes: type: P tig: atl: The lived experiences of the Sikh population of south east England when caring for a dying relative at home. aug: au: Cowan, Margaret Mary affil: Advanced Nurse Practitioner, Home Care Team and Day Therapy Unit, Ellenor Lions Hospices, Cold Harbour Road, Gravesend DA11 7HQ, England sug: subj: Asians Family Psychosocial Factors Caregivers Psychosocial Factors Caregiver Burden Caregiver Support Home Nursing Terminal Care Sikhs Phenomenological Research Human Semi-Structured Interview Thematic Analysis Content Analysis Terminally Ill Patients Family Relations Cultural Values Religion and Religions Family Role Health Resource Utilization Health Services Accessibility Purposive Sample Minority Groups Snowball Sample Male Female Adult Middle Age Aged Hospices Hospice Care Family Coping Professional-Family Relations Respite Care Gender Role Communication Barriers Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Background: Few ethnic minorities access specialist palliative care (SPC) services when caring for a dying relative at home. Objective: This project aimed to explore and understand the experiences of the Sikh population of south east England when caring for a dying relative at home without support from SPC. Methods: Six semi-structured interviews were conducted with carers in Punjabi or English and the transcripts were analysed using interpretative phenomenology. Results: Five super-ordinate themes were identified: factors leading to the caring role, emotional effects of caring on the carer, impact of caring on the wider family, influence of health-care services, and religious and cultural influence. The most common emergent theme was lack of support from health professionals, which emerged from a lack of awareness of services. A sense of duty and hard work was apparent throughout, and appeared to sustain the family. There seemed to be a sense of duty to care for the relative at home. Financial concerns were expressed frequently. The decision to adopt the caring role appeared to be made by the entire family. The Sikh faith seemed to give strength to carers. There appeared to be heightened awareness of what other community members think of carers' actions. Conclusions: There is a need for health professionals to reach out to this population to increase awareness of and trust in the services that are available to support care at the end of life. However, an unwillingness to accept assistance may persist in some cases. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|