A right to confidentiality or a duty to disclose? Ethical guidance for conducting prevention research with children and adolescents.

Conducting prevention research with children and adolescents raises ethical challenges especially regarding confidentiality. Research with children and adolescents often applies methodologies which aims at the disclosure of sensitive information about practices that impact on adolescent mental and p...

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Publicado en:European Child & Adolescent Psychiatry Vol. 23; no. 6; pp. 409 - 417
Autores principales: Hiriscau, Ioana, Stingelin-Giles, Nicola, Stadler, Christina, Schmeck, Klaus, Reiter-Theil, Stella
Formato: research systematic review tables/charts Journal Article
Publicado: Springer Nature Jun2014
Acceso en línea:Ver este registro en EBSCOhost
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        atl: A right to confidentiality or a duty to disclose? Ethical guidance for conducting prevention research with children and adolescents.
      aug:
        au:
          Hiriscau, Ioana
          Stingelin-Giles, Nicola
          Stadler, Christina
          Schmeck, Klaus
          Reiter-Theil, Stella
        affil: Clinical Ethics, Psychiatric Hospitals of the University Basel, University Hospital Basel, IBMB, Wilhelm Klein-Strasse 27 4012 Basel Switzerland
      sug:
        subj:
          Research, Mental Health Ethical Issues
          Preventive Health Care
          Confidentiality (Research)
          Truth Disclosure
          Research, Mental Health Standards
          Organizational Objectives
          Research, Mental Health Organizations
          Systematic Review
          Human
          Child
          Adolescence
          Medline
          Funding Source
          Child: 6-12 years
          Adolescent: 13-18 years
      ab: Conducting prevention research with children and adolescents raises ethical challenges especially regarding confidentiality. Research with children and adolescents often applies methodologies which aims at the disclosure of sensitive information about practices that impact on adolescent mental and physical health such as sexual activity, smoking, alcohol consumption, illegal drug use, self-damaging and suicidal behaviour (ideation and attempts). The scope of the article is to review normative documents that cover topics relevant for confidentiality when conducting research with children and adolescents. A systematic literature search in MEDLINE was performed to identify relevant international and European guidelines and codes of ethics that cover health, behavioural and social science research. Additionally, the European Research Ethics website was consulted for double check. However, none of the documents aimed at biomedical, behavioural or social research offers concrete support in resolving practical research ethics problems regarding confidentiality. The codes show a lack of clarity in any circumstances in which the researcher might have an obligation to breach confidentiality by disclosing sensitive information. Only little information is given on what kind of disclosed information, if disclosed, might justify breaching confidentiality. The findings prove a need for normative documents to address the ethical questions regarding confidentiality arising in research practice explicitly and specifically. Moreover, further forms of ethical guidance should be developed to support ethical research with children and adolescents.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
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      ougenre: Article
    language: English
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