The lived experience of parents of children admitted to the pediatric intensive care unit in Lebanon.

Background: Family caregivers have a significant responsibility in the care of their child in the Pediatric Intensive Care Unit (PICU). Parents staying with their child in the PICU have particular needs that should be acknowledged and responded to by clinicians. Several studies have been conducted i...

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Published in:International Journal of Nursing Studies Vol. 51; no. 2; pp. 217 - 226
Main Authors: Majdalani, Marianne N., Doumit, Myrna A. A., Rahi, Amal C.
Format: research tables/charts Journal Article
Published: Elsevier B.V. 2014
Online Access:View this record in EBSCOhost
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      dt: 2014
      vid: 51
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      pub: Elsevier B.V.
      place: Philadelphia, Pennsylvania
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        10.1016/j.ijnurstu.2013.06.001
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        atl: The lived experience of parents of children admitted to the pediatric intensive care unit in Lebanon.
      aug:
        au:
          Majdalani, Marianne N.
          Doumit, Myrna A. A.
          Rahi, Amal C.
        affil: Department of Pediatrics and Adolescent Medicine, American University of Beirut Medical Center, Lebanon
      sug:
        subj:
          Child, Hospitalized
          Critical Care In Infancy and Childhood
          Intensive Care Units, Pediatric
          Life Experiences
          Parents
          Caregivers
          Human
          Funding Source
          Lebanon
          Phenomenological Research
          Purposive Sample
          Thematic Analysis
          Professional-Family Relations
          Cultural Values
          Parental Role
          Narratives
          Semi-Structured Interview
          Academic Medical Centers
          Multidisciplinary Care Team
          Data Analysis Software
          Male
          Female
          Adult
          Educational Status
          Length of Stay
          Infant
          Child, Preschool
          Child
          Adolescence
          Inpatients
          Parent-Child Relations
          Health Facility Environment
          Communication
          Infection Control
          Cross Infection Prevention and Control
          Religion and Religions
          Human Dignity
          Pediatric Critical Care Nursing
          Physicians
          Clinical Competence
          Stress, Psychological
          Adult: 19-44 years
          Infant: 1-23 months
          Child, Preschool: 2-5 years
          Child: 6-12 years
          Adolescent: 13-18 years
          Male
          Female
      ab: Background: Family caregivers have a significant responsibility in the care of their child in the Pediatric Intensive Care Unit (PICU). Parents staying with their child in the PICU have particular needs that should be acknowledged and responded to by clinicians. Several studies have been conducted in the USA and Europe to try to understand the experience of family caregivers of children admitted to the Pediatric Intensive Care Unit. There are no such studies in Lebanon or the Middle East where the culture and support systems differ from other countries. Objective: To understand the lived experience of Lebanese parents of children admitted to the PICU in a tertiary hospital in Beirut. Design: Phenomenological study. Methods: The study followed purposeful sampling in which 10 parents (mother or father) of children admitted to PICU were interviewed. Data were analyzed following the hermeneutical process as described by Diekelmann and Ironside (1998). Results: A constitutive pattern ''Journey into the unknown'' which constitutes an overarching theme and four major themes with subthemes emerged from the data. These were: We are human beings with dignity ''; ''looking for a healthier environment''; Dependence on God and ''The need to be in the loop'' reveal the parents' journey into the unknown. Conclusion: This qualitative study adds to the knowledge that would help health care workers understand the experience of Lebanese parents with a child in PICU and to highlight the significance of this experience to them. The findings could be used to inform the development of a PICU parental satisfaction instrument for the sample group.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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