Reliability of Family Proxy Data for Studies of Malignant Mesothelioma: Results from the ATSDR Pilot Surveillance.

Objective. To evaluate the validity of proxy interviews in obtaining information on persons with rapidly fatal diseases such as malignant mesothelioma (MM). Methods. Persons with MM diagnosed in 2002 through 2005 in New York and New Jersey and 1997-2004 in Wisconsin were eligible for inclusion in th...

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Publicado en:ISRN Oncology pp. 1 - 6
Autores principales: Melnikova, Natalia, Wu, Jennifer, Kaye, Wendy, Orr, Maureen
Formato: equations & formulas research tables/charts Journal Article
Publicado: Wiley-Blackwell 2013
Acceso en línea:Ver este registro en EBSCOhost
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      dt: 2013
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        104060960
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        10.1155/2013/325409
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        atl: Reliability of Family Proxy Data for Studies of Malignant Mesothelioma: Results from the ATSDR Pilot Surveillance.
      aug:
        au:
          Melnikova, Natalia
          Wu, Jennifer
          Kaye, Wendy
          Orr, Maureen
        affil: Agency for Toxic Substances and Disease Registry, Division of Toxicology and Health Sciences, Buford Highway, Atlanta, GA 30341, USA
      sug:
        subj:
          Mesothelioma, Malignant
          Reliability
          Data Collection
          Family
          Human
          Georgia
          Questionnaires
          Descriptive Statistics Utilization
          Male
          Female
          Middle Age
          Aged
          Aged, 80 and Over
          Interviews
          McNemar's Test Utilization
          Data Analysis Software Utilization
          Middle Aged: 45-64 years
          Aged: 65+ years
          Aged, 80 & over
          Male
          Female
      ab: Objective. To evaluate the validity of proxy interviews in obtaining information on persons with rapidly fatal diseases such as malignant mesothelioma (MM). Methods. Persons with MM diagnosed in 2002 through 2005 in New York and New Jersey and 1997-2004 in Wisconsin were eligible for inclusion in the project. Persons with MM and their family member proxy were interviewed using the same questionnaire designed by ATSDR to collect information on potential direct or indirect occupational and environmental exposure to asbestos, genetic, and health related malignancy predisposition, and exposure to tobacco products. Descriptive statistics and the McNemar/Durkalski test were used to analyze 33 matched pairs. Results. The overall study confirmed a generally high ability of proxies to give interviews of comparable quality and completeness when asked dichotomous questions. The reliability of information collected from proxies varied by topic and family relationship. Conclusions. Family proxy interviews, using dichotomous responses, can serve as an acceptable source of information about health and exposure-related risk factors for MM.
      pubtype: Academic Journal
      doctype:
        equations & formulas
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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