Patient and provider views on the use of medical services by women with intellectual disabilities.

Background People with intellectual disabilities (ID) receive primary care in community-based practices and are encouraged to participate in the physician-patient relationship. However, the nature of this participation is not known. Methods Qualitative data were analysed to obtain perspectives from...

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Publicado en:Journal of Intellectual Disability Research Vol. 57; no. 11; pp. 1058 - 1068
Autores principales: Wilkinson, J., Dreyfus, D., Bowen, D., Bokhour, B.
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Nov2013
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Nov2013
      vid: 57
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      pub: Wiley-Blackwell
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        10.1111/j.1365-2788.2012.01606.x
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        atl: Patient and provider views on the use of medical services by women with intellectual disabilities.
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          Wilkinson, J.
          Dreyfus, D.
          Bowen, D.
          Bokhour, B.
        affil: Family Medicine, Boston University School of Medicine, Boston, MA, USA; Community Health Sciences, Boston University School of Public Health, Boston, MA, USA
      sug:
        subj:
          Intellectual Disability
          Women's Health
          Health Resource Utilization
          Patient Attitudes
          Attitude of Health Personnel
          Human
          Female
          Qualitative Studies
          Thematic Analysis
          Physician-Patient Relations
          Semi-Structured Interview
          Communication
          Time Factors
          Discrimination
          Adult
          Interview Guides
          Middle Age
          Aged
          Male
          Caregivers
          Descriptive Statistics
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Female
          Male
      ab: Background People with intellectual disabilities (ID) receive primary care in community-based practices and are encouraged to participate in the physician-patient relationship. However, the nature of this participation is not known. Methods Qualitative data were analysed to obtain perspectives from patients and providers regarding clinic visits. Patient participants were recruited from community organisations, while physician participants were recruited from emails and phone calls to local and regional practices and a national and regional list serve. Analysis methods derived from grounded theory were used. Results Twenty-seven women with ID and 22 family physicians were interviewed. Themes important to both groups included time, how the support worker should be used in the encounter and the nature of the physician-patient relationship. Patients expressed frustration at how little time they spent with their physician, and wished that physicians would speak directly to them instead of to their support worker. Physicians felt that patients with ID took too much time, and said that they preferred communicating with the support worker. The interviews also revealed unconscious biases about people with ID. Conclusions Patient participation is encouraged for people with ID, but is limited because of both physician and patient factors. Greater awareness of these factors may improve care for patients with ID.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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