The impact of diabetic retinopathy on quality of life: qualitative findings from an item bank development project.
Purpose: Assessing the efficacy of treatment modalities for diabetic retinopathy (DR) from the patient's perspective is restricted due to a lack of a comprehensive patient-reported outcome measure. We are developing a DR-specific quality of life (QoL) item bank, and we report here on the qualitative...
| Publicado en: | Quality of Life Research Vol. 21; no. 10; pp. 1771 - 1783 |
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| Autores principales: | , , , , , , , , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Springer Nature
Dec2012
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=104296213&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 104296213 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Dec2012 vid: 21 iid: 10 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 104296213 104296213 NLM22290480 2011904796 NLM22290480 104296213 ppf: 1771 ppct: 12 formats: fmt: @attributes: type: P tig: atl: The impact of diabetic retinopathy on quality of life: qualitative findings from an item bank development project. aug: au: Fenwick EK Pesudovs K Khadka J Dirani M Rees G Wong TY Lamoureux EL Fenwick, Eva K Pesudovs, Konrad Khadka, Jyoti Dirani, Mohamed Rees, Gwyn Wong, Tien Y Lamoureux, Ecosse L affil: Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, University of Melbourne, 32 Gisborne St, East Melbourne, VIC 3002, Australia sug: subj: Diabetic Retinopathy Physiopathology Diabetic Retinopathy Psychosocial Factors Outcome Assessment Methods Quality of Life Vision Disorders Diagnosis Adult Aged Aged, 80 and Over Diabetic Retinopathy Therapy Female Focus Groups Human Male Middle Age Questionnaires Adult: 19-44 years Aged: 65+ years Aged, 80 & over Middle Aged: 45-64 years Female Male ab: Purpose: Assessing the efficacy of treatment modalities for diabetic retinopathy (DR) from the patient's perspective is restricted due to a lack of a comprehensive patient-reported outcome measure. We are developing a DR-specific quality of life (QoL) item bank, and we report here on the qualitative results from the first phase of this project.Methods: Eight focus groups and 18 semi-structured interviews were conducted with 57 patients with DR. The sessions were transcribed verbatim and iteratively analysed using the constant comparative method and NVIVO software.Results: Participants had a median age of 58 years (range 27-83 years). Twenty-seven (47%) participants had proliferative DR in the better eye, and 14 (25%) had clinically significant macular oedema. Nine QoL domains were identified, namely visual symptoms, ocular surface symptoms, vision-related activity limitation, mobility, emotional well-being, health concerns, convenience, social, and economic. Participants described many vision-related activity limitations, particularly under challenging lighting conditions; however, socioemotional issues were equally important. Participants felt frustrated due to their visual restrictions, concerned about further vision loss and had difficulty coping with this uncertainty. Restrictions on driving were pervasive, affecting transport, social life, relationships, responsibilities, work and independence.Conclusions: Patients with DR experience many socioemotional issues in addition to vision-related activity limitations. Data from this study will be used to generate data for a DR-specific QoL item bank. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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