Communication Styles of Persons with ALS as Recounted by Surviving Partners.

The purpose of this study was to describe the communication patterns of individuals with Amyotrophic Lateral Sclerosis (ALS) as reported from the surviving spouses' perspectives. Six surviving spouses of people with ALS participated in semi-structured interviews after the deaths of their partners. T...

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Publicado en:AAC: Augmentative & Alternative Communication Vol. 28; no. 4; pp. 232 - 243
Autores principales: Mckelvey, Miechelle, Evans, David L., Kawai, Norimune, Beukelman, David
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Dec2012
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Dec2012
      vid: 28
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      pub: Taylor & Francis Ltd
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        atl: Communication Styles of Persons with ALS as Recounted by Surviving Partners.
      aug:
        au:
          Mckelvey, Miechelle
          Evans, David L.
          Kawai, Norimune
          Beukelman, David
        affil: Department of Communication Disorders, University of Nebraska Kearney, Kearney, NE, USA
      sug:
        subj:
          Amyotrophic Lateral Sclerosis
          Communication
          Spouses
          Human
          Nebraska
          Semi-Structured Interview
          Alternative and Augmentative Communication
          Communication Aids for Persons with Disabilities
          Decision Making
          Life Style Changes
          Purposive Sample
          Male
          Female
          Adult
          Middle Age
          Aged
          Interviews
          Attitude to Illness
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: The purpose of this study was to describe the communication patterns of individuals with Amyotrophic Lateral Sclerosis (ALS) as reported from the surviving spouses' perspectives. Six surviving spouses of people with ALS participated in semi-structured interviews after the deaths of their partners. The interviews were transcribed and coded. Data analysis revealed four primary themes: communication styles, augmentative and alternative communication (AAC) use, decision-making, and lifestyle changes. Spouses described unique changes in communication styles as their partners began to use augmentative communication strategies and devices. AAC devices were described as essential for individuals with ALS with respect to decision making and maintaining social roles. Spouses stated the importance of adapting social activities in order to maintain involvement in the community as well as with family and friends.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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