Development and implementation of an Internet-based survivorship care program for cancer survivors treated with hematopoietic stem cell transplantation.
Introduction: The Internet provides a widely accessible modality for meeting survivorship care needs of cancer survivors. In this paper, we describe the development and implementation of an Internet site designed as a base from which to conduct a randomized controlled trial to meet psycho-educationa...
| Publicado en: | Journal of Cancer Survivorship Vol. 5; no. 3; pp. 292 - 305 |
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| Autores principales: | , , , , , , , , , , , , , , , |
| Formato: | clinical trial research Journal Article |
| Publicado: |
Springer Nature
Sep2011
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=104578180&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 104578180 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 19322259 46CU jtl: Journal of Cancer Survivorship issn: 19322259 maglogo: N pubinfo: dt: Sep2011 vid: 5 iid: 3 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 104578180 NLM21544671 2011254306 10.1007/s11764-011-0182-x NLM21544671 PMC3260882 104578180 ppf: 292 ppct: 13 formats: fmt: @attributes: type: P tig: atl: Development and implementation of an Internet-based survivorship care program for cancer survivors treated with hematopoietic stem cell transplantation. aug: au: Syrjala KL Stover AC Yi JC Artherholt SB Romano EM Schoch G Stewart S Flowers ME Syrjala, Karen L Stover, Allison C Yi, Jean C Artherholt, Samantha B Romano, Eleni M Schoch, Gary Stewart, Susan Flowers, Mary E D affil: Clinical Research Division, Fred Hutchinson Cancer Research Center, 1100 Fairview Ave N, D5-220, P.O. Box 19024, Seattle, WA 98109, USA sug: subj: Hematopoietic Stem Cell Transplantation Internet Utilization Neoplasms Therapy Program Development Survival Survivors Adolescence Adult Aged Health Care Delivery Methods Health Care Delivery Administration Female Health and Welfare Planning Human Male Middle Age Neoplasms Mortality Rehabilitation, Cancer Patient Education Methods Young Adult Clinical Trials Adolescent: 13-18 years Adult: 19-44 years Aged: 65+ years Middle Aged: 45-64 years Female Male ab: Introduction: The Internet provides a widely accessible modality for meeting survivorship care needs of cancer survivors. In this paper, we describe the development and implementation of an Internet site designed as a base from which to conduct a randomized controlled trial to meet psycho-educational needs of hematopoietic stem cell transplantation (HSCT) survivors.Methods: A cross-disciplinary team designed, wrote content, and programmed an Internet site for online study registration, consent, assessment, and study implementation. All survivors who were 3-18 years after HSCT for hematologic malignancy and treated at one transplant center were approached by mail for participation. All study activities could be conducted without study staff contact. However, participants had options for phone or email contact with study staff as desired.Results: Of 1,775 participants approached for the study, 775 (58% of those eligible) consented and completed baseline assessment. Mean age was 51.7 (SD, 12.5; age range, 18-79 years), with 56% male. Fifty-seven percent required staff contact one or more times; a majority were for minor technical issues or delays in completion of enrollment or baseline assessment.Discussions/conclusions: This study demonstrated the potential for providing Internet-based survivorship care to long-term survivors of HSCT. Although building a survivorship Internet site requires a team with diverse expertise, once built, these resources can be implemented rapidly with large numbers of survivors.Implications For Cancer Survivors: While Internet-based services will not meet all the needs of cancer survivors, this methodology represents an important modality for augmenting onsite clinical services as a method for meeting psycho-educational, information, and resource needs of cancer survivors. pubtype: Academic Journal doctype: clinical trial research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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