The king's foot of patient-reported outcomes: current practices and new developments for the measurement of change.

Purpose: Assessing change remains a challenge in patient-reported outcomes. In June 2009, a group of psychometricians, biostatisticians, and behavioral researchers from other disciplines convened as a Longitudinal Analysis of Patient-Reported Outcomes Working group as part of the Statistical and App...

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Publicado en:Quality of Life Research Vol. 20; no. 8; pp. 1159 - 1168
Autores principales: Swartz RJ, Schwartz C, Basch E, Cai L, Fairclough DL, McLeod L, Mendoza TR, Rapkin B, Swartz, Richard J, Schwartz, Carolyn, Basch, Ethan, Cai, Li, Fairclough, Diane L, McLeod, Lori, Mendoza, Tito R, Rapkin, Bruce
Formato: research Journal Article
Publicado: Springer Nature Oct2011
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Springer Nature
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        atl: The king's foot of patient-reported outcomes: current practices and new developments for the measurement of change.
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          Swartz RJ
          Schwartz C
          Basch E
          Cai L
          Fairclough DL
          McLeod L
          Mendoza TR
          Rapkin B
          Swartz, Richard J
          Schwartz, Carolyn
          Basch, Ethan
          Cai, Li
          Fairclough, Diane L
          McLeod, Lori
          Mendoza, Tito R
          Rapkin, Bruce
        affil: Jones Graduate School of Business, Rice University, Houston, TX, USA
      sug:
        subj:
          Outcome Assessment Methods
          Quality of Life
          Sickness Impact Profile
          Health Status
          Interprofessional Relations
          Psychometrics
          Treatment Outcomes
      ab: Purpose: Assessing change remains a challenge in patient-reported outcomes. In June 2009, a group of psychometricians, biostatisticians, and behavioral researchers from other disciplines convened as a Longitudinal Analysis of Patient-Reported Outcomes Working group as part of the Statistical and Applied Mathematical Sciences Institute Summer Psychometric program to discuss the complex issues that arise when conceptualizing and operationalizing "change" in patient-reported outcome (PRO) measures and related constructs. This white paper summarizes these issues and provides recommendations and possible paths for dealing with the complexities of measuring change.Methods/results: This article presents and discusses issues associated with: (1) conceptualizing and operationalizing change in PRO measures; (2) modeling change using state-of-the-art statistical methods; (3) impediments to detecting true change; (4) new developments to deal with these challenges; and (5) important gaps that are fertile ground for future research.Conclusions: There was a consensus that important research still needs to be performed in order develop and refine high-quality PRO measures and statistical methods to analyze and model change in PRO constructs.
      pubtype: Academic Journal
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        research
        Journal Article
      ougenre: Article
    language: English
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