Justice, Fairness, and Membership in a Class: Conceptual Confusions and Moral Puzzles in the Regulation of Human Subjects Research.

This essay examines conceptual difficulties with one of the ways in which justice has been understood and applied the ethical and regulatory review of human research. Justice requires the fair distribution of the benefits and burdens of research. Class membership is seen as justifying inclusion in h...

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Publicado en:Journal of Law, Medicine & Ethics Vol. 39; no. 3; pp. 488 - 502
Autor principal: Iltis, Ana S.
Formato: tables/charts Journal Article
Publicado: Cambridge University Press Fall2011
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Justice, Fairness, and Membership in a Class: Conceptual Confusions and Moral Puzzles in the Regulation of Human Subjects Research.
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        au: Iltis, Ana S.
        affil: Director of the Center for Bioethics, Health and Society at Wake Forest University and an Associate Professor of Philosophy.
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        subj:
          Social Justice
          Research Subjects Ethical Issues
          Named Groups
          Research Subjects Legislation and Jurisprudence
          United States
          Research, Medical Ethical Issues
          Parents
          Research Subject Recruitment
      ab: This essay examines conceptual difficulties with one of the ways in which justice has been understood and applied the ethical and regulatory review of human research. Justice requires the fair distribution of the benefits and burdens of research. Class membership is seen as justifying inclusion in higher hazard-no benefit research from which members of potentially vulnerable classes, such as children, typically would be excluded. I argue that class membership does not do the justificatory work it is thought to do and that the use of class membership to justify inclusion in higher hazard-no benefit research leads to unjustified discrimination of sick children and offers special protections to healthy children.
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