The role of community nurses and residential staff in supporting women with intellectual disability to access breast screening services.

Women with intellectual disability (ID) are surviving to the age group at greatest risk of developing breast cancer (50-69 years). These women are more likely to experience a greater number of risk factors placing them at an advanced threat of developing breast cancer. However, as a result of cognit...

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Publicado en:Journal of Intellectual Disability Research Vol. 55; no. 1; pp. 41 - 53
Autores principales: Taggart, L., Truesdale-Kennedy, M., McIlfatrick, S.
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Jan2011
Acceso en línea:Ver este registro en EBSCOhost
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        atl: The role of community nurses and residential staff in supporting women with intellectual disability to access breast screening services.
      aug:
        au:
          Taggart, L.
          Truesdale-Kennedy, M.
          McIlfatrick, S.
        affil: Institute of Nursing Research, University of Ulster, Coleraine, Northern Ireland, UK
      sug:
        subj:
          Community Health Nursing
          Nursing Role
          Intellectual Disability
          Persons with Intellectual Disabilities
          Health Services Accessibility
          Cancer Screening
          Breast Neoplasms Diagnosis
          Human
          Health Personnel
          Breast Neoplasms Risk Factors
          Focus Groups
          United Kingdom
          Audiorecording
          Thematic Analysis
          Content Analysis
          Health Education
          Health Promotion
          Female
          Male
          Purposive Sample
          Semi-Structured Interview
          Interview Guides
          Breast Neoplasms Symptoms
          Support, Psychosocial
          Funding Source
          Female
          Male
      ab: Women with intellectual disability (ID) are surviving to the age group at greatest risk of developing breast cancer (50-69 years). These women are more likely to experience a greater number of risk factors placing them at an advanced threat of developing breast cancer. However, as a result of cognitive deficits and communication difficulties these women are dependent upon staff to support them to attend the breast screening clinics. The aim of this paper was to examine how community nurses and residential staff support women with ID to access breast screening services. Six focus groups were held with community nurses and residential staff who work in the field of ID in one region of the UK. The focus groups were tape recorded and the transcriptions were subjected to a thematic content analysis. Although many of the participants recognised the risk factors and signs/symptoms of breast cancer, there was still a deficit of knowledge. Both positive and negative experiences of women with ID attending for breast screening were reported; however, greater discussion focused on the latter. The participants identified 'a lack of health educational material' and also negative 'emotions, attitudes and physical barriers' as inhibiting factors for attendance. This paper highlights the need for developing a health promotion programme for women with ID focusing on breast awareness and information on screening, and also healthier lifestyles. Breast awareness via visual checks was identified for women with ID who refused to attend the breast clinics; however, issues of informed 'consent' and 'vulnerability' were raised for staff and also family carers having to undertake these checks. Development of user-friendly health educational literature using 'pictures, symbols, signs' and simplified words should be accessible to all ID staff, healthcare staff, and also women with ID.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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