Creating an assistive technology clinic: The experience of the Johns Hopkins AT Clinic for patients with ALS.
For persons with Amyotrophic Lateral Sclerosis (ALS), comprehensive multidisciplinary care can effectively improve overall quality of life from diagnosis to end of life [16]. Considering the rapidly progressive loss in overall function experienced by persons with ALS, it is essential to provide comp...
| Publicado en: | NeuroRehabilitation Vol. 28; no. 3; pp. 281 - 294 |
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| Autores principales: | , |
| Formato: | pictorial research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
2011
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=104894563&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 104894563 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10538135 3RE jtl: NeuroRehabilitation issn: 10538135 maglogo: N pubinfo: dt: 2011 vid: 28 iid: 3 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 104894563 104894563 2011042130 10.3233/NRE-2011-065 NLM21558633 104894563 ppf: 281 ppct: 13 formats: fmt: @attributes: type: P tig: atl: Creating an assistive technology clinic: The experience of the Johns Hopkins AT Clinic for patients with ALS. aug: au: Gentry, Tony Casey, Kelly Showalter affil: Department of Occupational Therapy, Virginia Commonwealth University, P.O. Box 980008, Richmond, VA 23298-0008, USA sug: subj: Program Development Hospital Programs Amyotrophic Lateral Sclerosis Therapy Assistive Technology Hospital Units Human Multidisciplinary Care Team Amyotrophic Lateral Sclerosis Complications Persons with Disabilities Maryland Amyotrophic Lateral Sclerosis Physiopathology Amyotrophic Lateral Sclerosis Symptoms Health Personnel Organizational Structure Health Services Accessibility ab: For persons with Amyotrophic Lateral Sclerosis (ALS), comprehensive multidisciplinary care can effectively improve overall quality of life from diagnosis to end of life [16]. Considering the rapidly progressive loss in overall function experienced by persons with ALS, it is essential to provide comprehensive multidisciplinary care, including Assistive Technology (AT) services, in an effective and efficient manner. AT is an important adjunctive therapy for people with neurological disability. For people with complex conditions, access to a comprehensive AT clinic can be the best way to access these tools. Unfortunately, few medical centers have invested in AT clinics, and managers may not understand how to go about developing AT resources at their facility. This article chronicles the step-by-step development of The Johns Hopkins Assistive Technology Clinic for persons with ALS. It offers background evidence, the process of program development, and insight into the experience of professional accountability of one occupational therapist turned AT Director. It also details descriptions of the stakeholders and their roles in the development process, funding and ethical considerations, and barriers to implementation. It is hoped that this may provide guidance for teams who may wish to build AT facilities in their own practice settings. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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