Advanced multiple sclerosis and the psychosocial impact on families.
This study explores family relationships and support needs when adapting to a relative's advanced-multiple sclerosis (MS) around transition into care. A multi-site qualitative study of relatives of people with advanced-MS was conducted. A purposive sample of 25 relatives was selected and interviewed...
| Publicado en: | Psychology & Health Vol. 26; no. 1; pp. 113 - 128 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Jan2011
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=104959673&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 104959673 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 08870446 7WK jtl: Psychology & Health issn: 08870446 maglogo: N pubinfo: dt: Jan2011 vid: 26 iid: 1 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 104959673 56040388 10.1080/08870440903287934 NLM20204981 104959673 ppf: 113 ppct: 15 formats: fmt: @attributes: type: P tig: atl: Advanced multiple sclerosis and the psychosocial impact on families. aug: au: Bowen C MacLehose A Beaumont JG affil: The Institute for Neuropalliative Rehabilitation, Royal Hospital for Neuro-disability, London SW15 3SW, UK sug: subj: Multiple Sclerosis Psychosocial Factors Family Psychosocial Factors Respite Care Family Relations Patient Admission Human Purposive Sample Multicenter Studies Cross Sectional Studies Qualitative Studies Grounded Theory Funding Source Severity of Illness Data Analysis Software Triangulation Disease Progression Interviews Middle Age Adult Aged Aged, 80 and Over Female Male Role Change Support, Psychosocial Family Centered Care Scales Clinical Assessment Tools Middle Aged: 45-64 years Adult: 19-44 years Aged: 65+ years Aged, 80 & over Female Male ab: This study explores family relationships and support needs when adapting to a relative's advanced-multiple sclerosis (MS) around transition into care. A multi-site qualitative study of relatives of people with advanced-MS was conducted. A purposive sample of 25 relatives was selected and interviewed either in the care home or participants' homes. Interviews were recorded, transcribed and analysed using grounded theory methodology and Atlas.ti 5.2 software. Data quality enhancement involved: a self-report questionnaire; triangulation and member-checking. Themes derived from the data were: information, communication and understanding; family relationships, roles and responsibilities; emotions, coping and support; life outlook and reflection. Provision of information and support for families around the transition into care appears to be inconsistent despite there being a need for family members to ask questions and discuss the impact of the condition. Relatives reported that as a family and as individuals they faced significant challenges and were in great need of support at times, but reflected that they would have found it very difficult to accept. Relatives were also often unsure what type of support would have helped. For care providers, there needs to be a shift from the traditional health care professional 'patient-centred' mindset towards more proactive family-centred approaches and steps to encourage this are articulated. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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