Accessing vulnerable research populations: an experience with gatekeepers of ethical approval.
Accessing vulnerable populations for research purposes can be difficult, as participants must be sheltered from research that might be insensitive, intrusive, and potentially distressing. People diagnosed with a life-limiting condition may be vulnerable, and involving such people in research samples...
| Publicado en: | International Journal of Palliative Nursing Vol. 17; no. 1; pp. 14 - 19 |
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| Autores principales: | , |
| Formato: | case study tables/charts Journal Article |
| Publicado: |
Mark Allen Holdings Limited
Jan2011
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=104998793&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 104998793 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13576321 GHF jtl: International Journal of Palliative Nursing issn: 13576321 maglogo: N pubinfo: dt: Jan2011 vid: 17 iid: 1 pid: 11383 pub: Mark Allen Holdings Limited artinfo: ui: 104998793 57728001 10.12968/ijpn.2011.17.1.14 NLM21278669 104998793 ppf: 14 ppct: 5 formats: fmt: @attributes: type: P tig: atl: Accessing vulnerable research populations: an experience with gatekeepers of ethical approval. aug: au: Walker S Read S affil: PhD student, Institute for Life Course Studies, Keele University, Staffordshire, UK sug: subj: Vulnerability Research Subject Recruitment Research Ethics Gatekeeping Terminally Ill Patients Caregivers Researcher-Subject Relations ab: Accessing vulnerable populations for research purposes can be difficult, as participants must be sheltered from research that might be insensitive, intrusive, and potentially distressing. People diagnosed with a life-limiting condition may be vulnerable, and involving such people in research samples may be fraught with difficulties. Nevertheless, it is important that these vulnerable populations participate in health and social-care research so that their requirements and opinions can be learnt. This paper describes an experience of proceeding through an ethical approval process for a proposed qualitative research study into the preferred place of death of a group of potentially vulnerable hospice patients. Research of this nature had never been undertaken at the hospice before, and the researchers expected to encounter a degree and variety of gatekeeping when seeking access to this sensitive population. pubtype: Academic Journal doctype: case study tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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