Children's and Parents' Perspectives About Activity Performance and Participation After Spinal Cord Injury: Initial Development of a Patient-Reported Outcome Measure.
OBJECTIVE. To report on a cognitive testing study on newly constructed items designed to evaluate clientreported outcomes of activity performance and participation after spinal cord injury (SCI). METHOD. Thirty-three children with SCI and 13 caregivers participated in cognitive testing interviews. O...
| Publicado en: | American Journal of Occupational Therapy Vol. 64; no. 4; pp. 605 - 614 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
American Occupational Therapy Association
Jul/Aug2010
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105056518&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105056518 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02729490 44I jtl: American Journal of Occupational Therapy issn: 02729490 maglogo: N pubinfo: dt: Jul/Aug2010 vid: 64 iid: 4 pid: 6680 pub: American Occupational Therapy Association place: North Bethesda, Maryland artinfo: ui: 105056518 52158721 10.5014/ajot.2010.08148 NLM20825132 105056518 ppf: 605 ppct: 9 formats: fmt: @attributes: type: P tig: atl: Children's and Parents' Perspectives About Activity Performance and Participation After Spinal Cord Injury: Initial Development of a Patient-Reported Outcome Measure. aug: au: Mulcahey, M. J. DiGiovanni, Nicole Calhoun, Christina Homko, Erica Riley, Ann Haley, Stephen M. affil: Director of Rehabilitation Services and Clinical Research, Shriners Hospitals for Children, 3551 North Broad Street, Philadelphia, PA 19140 sug: subj: Activities of Daily Living Evaluation Cognition Evaluation Instrument Construction Instrument Validation Spinal Cord Injuries In Infancy and Childhood Adolescence Architectural Accessibility Audiorecording Autonomy Child Computerized Adaptive Testing Fear Funding Source Human Interviews Outcomes (Health Care) Parental Attitudes Evaluation Patient Attitudes Evaluation Purposive Sample Scales Spinal Cord Injuries Psychosocial Factors Thematic Analysis United States Validation Studies Adolescent: 13-18 years Child: 6-12 years ab: OBJECTIVE. To report on a cognitive testing study on newly constructed items designed to evaluate clientreported outcomes of activity performance and participation after spinal cord injury (SCI). METHOD. Thirty-three children with SCI and 13 caregivers participated in cognitive testing interviews. Open-ended questions were used to gain a better understanding of activity performance and participation. The interviews were transcribed verbatim. A thematic analysis was carried out independently by 2 researchers, and key sentences and phrases from both analyses were merged. RESULTS. Four themes were defined: (1) apprehension related to activity performance and participation, (2) reference point, (3) missing out, and (4) autonomy. CONCLUSION. Insight into children's and caregivers' perspectives provided important information that helped refine the wording of test items and response scales. The theme of autonomy provided a stronger catalyst to solidify items for both child- and parent-reported outcomes. This study further validated the complexity of the construct of participation. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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