Brief report: Under-representation of African Americans in autism genetic research: a rationale for inclusion of subjects representing diverse family structures.
African American children with autism are seriously under-represented in existing genetic registries and biomedical research studies of autism. We estimated the number of African American children with autism in the St. Louis region using CDC surveillance data and present the outcomes of a concerted...
| Publicado en: | Journal of Autism & Developmental Disorders Vol. 40; no. 5; pp. 633 - 640 |
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| Autores principales: | , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
May2010
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105184420&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105184420 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01623257 AUT jtl: Journal of Autism & Developmental Disorders issn: 01623257 maglogo: N pubinfo: dt: May2010 vid: 40 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 105184420 2010637370 10.1007/s10803-009-0905-2 NLM19936905 105184420 ppf: 633 ppct: 7 formats: fmt: @attributes: type: P tig: atl: Brief report: Under-representation of African Americans in autism genetic research: a rationale for inclusion of subjects representing diverse family structures. aug: au: Hilton CL Fitzgerald RT Jackson KM Maxim RA Bosworth CC Shattuck PT Geschwind DH Constantino JN affil: Department of Psychiatry, Washington University School of Medicine, 660 S. Euclid, St Louis, MO 63110 USA sug: subj: Autism Spectrum Disorder Minority Groups Research Subject Recruitment African Americans Funding Source Human Missouri Nonexperimental Studies Prospective Studies Record Review Registries, Disease ab: African American children with autism are seriously under-represented in existing genetic registries and biomedical research studies of autism. We estimated the number of African American children with autism in the St. Louis region using CDC surveillance data and present the outcomes of a concerted effort to enroll approximately one-third of that population into either of two large national genetic autism registries. The results revealed that even after traditional barriers to research participation were addressed and all contacted families expressed a willingness to participate, 67% of the reachable families were disqualified from participation because of family structure alone. Comprehensive efforts-including expansion of eligibility to families of diverse structure-are warranted to facilitate the inclusion of African American children in biomedical research. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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