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Patient participation as dialogue: setting research agendas.

Background Collaboration with patients in healthcare and medical research is an emerging development. We aimed to develop a methodology for health research agenda setting processes grounded in the notion of participation as dialogue. Methods We conducted seven case studies between 2003 and 2007 to d...

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Published in:Health Expectations Vol. 13; no. 2; pp. 160 - 174
Main Authors: Abma TA, Broerse JEW
Format: tables/charts Journal Article
Published: Wiley-Blackwell Jun2010
Online Access:View this record in EBSCOhost
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      dt: Jun2010
      vid: 13
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        2010657079
        10.1111/j.1369-7625.2009.00549.x
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        atl: Patient participation as dialogue: setting research agendas.
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        au:
          Abma TA
          Broerse JEW
        affil: VU Medical Center, EMGO institute, Department of Medical Humanities, Amsterdam, The Netherlands
      sug:
        subj:
          Consumer Participation
          Professional-Patient Relations
          Research Methodology
          Focus Groups
          Models, Theoretical
          Questionnaires
          Reflection
          Thematic Analysis
      ab: Background Collaboration with patients in healthcare and medical research is an emerging development. We aimed to develop a methodology for health research agenda setting processes grounded in the notion of participation as dialogue. Methods We conducted seven case studies between 2003 and 2007 to develop and validate a Dialogue Model for patient participation in health research agenda setting. The case studies related to spinal cord injury, neuromuscular diseases, renal failure, asthma/chronic obstructive pulmonary disease, burns, diabetes and intellectual disabilities. Results The Dialogue Model is grounded in participatory and interactive approaches and has been adjusted on the basis of pilot work. It has six phases: exploration; consultation; prioritization; integration; programming; and implementation. These phases are discussed and illustrated with a case description of research agenda setting relating to burns. Conclusions The dialogue model appeared relevant and feasible to structure the process of collaboration between stakeholders in several research agenda setting processes. The phase of consultation enables patients to develop their own voice and agenda, and prepares them for the broader collaboration with other stakeholder groups. Challenges include the stimulation of more permanent changes in research, and institutional transitions.
      pubtype: Academic Journal
      doctype:
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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