Ethical issues in conducting research with persons with dementia.
Conducting research with persons with dementia can be a daunting task for new and experienced researchers. A myriad of concepts related to the consent process need to be considered. Historically, efforts to provide federal guidelines for the consent process with persons with dementia have been unsuc...
| Publicado en: | Southern Online Journal of Nursing Research Vol. 9; no. 4; pp. 11p - 12 |
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| Autores principales: | , , |
| Formato: | research systematic review tables/charts Journal Article |
| Publicado: |
Southern Nursing Research Society
Jul2009
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105281911&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105281911 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15380696 YZW jtl: Southern Online Journal of Nursing Research issn: 15380696 maglogo: N pubinfo: dt: Jul2009 vid: 9 iid: 4 pid: 20556 pub: Southern Nursing Research Society place: Tuscaloosa, Alabama artinfo: ui: 105281911 105281911 2010524108 105281911 ppf: 11p ppct: 1 formats: fmt: @attributes: type: T tig: atl: Ethical issues in conducting research with persons with dementia. aug: au: Aselage MB Conner B Carnevale T affil: 2009-2011 John A. Hartford Foundation BAGNC, Scholar Doctoral Student, Medical University of South Carolina, Lecturer, University of North Carolina Wilmington, 99 Jonathan Lucas Street, Charleston, SC 29425; aselagem@uncw.edu sug: subj: Dementia Protection of Human Subjects In Old Age Research Ethics Research Subjects In Old Age Aged CINAHL Database Competence (Legal) Consent Decision Making, Patient Human Institutional Review Medline PubMed Reference Databases, Health Risk Assessment Aged: 65+ years ab: Conducting research with persons with dementia can be a daunting task for new and experienced researchers. A myriad of concepts related to the consent process need to be considered. Historically, efforts to provide federal guidelines for the consent process with persons with dementia have been unsuccessful. Since 1979, the Belmont Report has been the guide for individual Institutional Review Boards and researchers. Efforts are currently underway to develop federal guidelines, but considerable time is anticipated before approval and implementation would take place. Existing international guidelines for defining capacity and the process of consent are examined briefly for comparison. The purpose of this review is to provide historical background and an overview of current regulatory guidelines related to the consent process; examine the role of legally authorized representatives; explore decision-making capacity, capacity, and competency as influencing factors in obtaining consent and assent both in the United States and internationally; and, to discuss methodological challenges and considerations. A dialogue among the present authors resulted in a synthesis of four exemplars as a 'partnership of consent' and subsequently an algorithm was designed to assist future researchers. pubtype: Academic Journal doctype: research systematic review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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