Moments of realization: life-limiting illness in childhood -- perspectives of children, young people and families.
Changing patterns of childhood deaths and survival from once-fatal medical conditions mean that many children and their families face prolonged uncertainty combined with profound needs. Studies of children with life-limiting conditions tend to focus on the acute or terminal stage but rarely investig...
| Publicado en: | International Journal of Palliative Nursing Vol. 16; no. 1; pp. 41 - 48 |
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| Autor principal: | |
| Formato: | research tables/charts Journal Article |
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Mark Allen Holdings Limited
Jan2010
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105306438&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105306438 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13576321 GHF jtl: International Journal of Palliative Nursing issn: 13576321 maglogo: N pubinfo: dt: Jan2010 vid: 16 iid: 1 pid: 11383 pub: Mark Allen Holdings Limited artinfo: ui: 105306438 105306438 2010551931 10.12968/ijpn.2010.16.1.46182 NLM20090662 105306438 ppf: 41 ppct: 7 formats: fmt: @attributes: type: P tig: atl: Moments of realization: life-limiting illness in childhood -- perspectives of children, young people and families. aug: au: Menezes A affil: Lead for Quality and Research, CHASE at Christopher's, Old Portsmouth Road, Artington, Surrey, UK sug: subj: Family Psychosocial Factors Terminally Ill Patients Psychosocial Factors Adolescence Case Studies Child Child, Preschool Female Grounded Theory Human Interviews Male Parents Psychosocial Factors Participant Observation Qualitative Studies Siblings Psychosocial Factors Adolescent: 13-18 years Child: 6-12 years Child, Preschool: 2-5 years Female Male ab: Changing patterns of childhood deaths and survival from once-fatal medical conditions mean that many children and their families face prolonged uncertainty combined with profound needs. Studies of children with life-limiting conditions tend to focus on the acute or terminal stage but rarely investigate the child's experience of chronic life threat over long periods of time. This article describes qualitative research focused on the experiences of 11 children and young people affected by life-limiting conditions. Parents and siblings were also vital contributors (39 participants from 10 families). The aim was to understand the perceptions and experiences of the child, and to frame that understanding with family insights. This study identified several 'moments of realization', representing times in the child's life when participants recognized the real threat to the child's life, these included: questions of inheritance, diagnosis and prognosis, acute loss of abilities, slow deterioration and life-threatening surgery. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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