Experience with an online prospective database on adolescent idiopathic scoliosis: development and implementation.

Considerable variability exists in the surgical treatment and outcomes of adolescent idiopathic scoliosis (AIS). This is due to the lack of evidence-based treatment guidelines and outcome measures. Although clinical trials have been extolled as the highest form of evidence for evaluating treatment e...

Descripción completa

Detalles Bibliográficos
Publicado en:European Spine Journal Vol. 17; no. 11; pp. 1497 - 1507
Autores principales: Arlet V, Shilt J, Bersusky E, Abel M, Ouellet JA, Evans D, Menon KV, Kandziora F, Shen F, Lamartina C, Adams M, Reddi V, Arlet, Vincent, Shilt, Jeffrey, Bersusky, Ernesto, Abel, Mark, Ouellet, Jean Albert, Evans, Davis, Menon, K V, Kandziora, Frank
Formato: research Journal Article
Publicado: Springer Nature Nov2008
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105574662&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 105574662
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        09406719
        NPI
      jtl: European Spine Journal
      issn: 09406719
      maglogo: N
    pubinfo:
      dt: Nov2008
      vid: 17
      iid: 11
      pid: 237
      pub: Springer Nature
      place: New York, New York
    artinfo:
      ui:
        105574662
        105574662
        NLM18830720
        2010100935
        10.1007/s00586-008-0779-6
        NLM18830720
        105574662
      ppf: 1497
      ppct: 10
      formats:
      tig:
        atl: Experience with an online prospective database on adolescent idiopathic scoliosis: development and implementation.
      aug:
        au:
          Arlet V
          Shilt J
          Bersusky E
          Abel M
          Ouellet JA
          Evans D
          Menon KV
          Kandziora F
          Shen F
          Lamartina C
          Adams M
          Reddi V
          Arlet, Vincent
          Shilt, Jeffrey
          Bersusky, Ernesto
          Abel, Mark
          Ouellet, Jean Albert
          Evans, Davis
          Menon, K V
          Kandziora, Frank
        affil: Department of Orthopedic Surgery, University of Virginia, Charlottesville, VA 22908, USA
      sug:
        subj:
          Resource Databases
          Scoliosis, Idiopathic, Adolescent Surgery
          Software
          Access to Information
          Adolescence
          Decision Support Techniques
          Neurosurgery Statistics and Numerical Data
          Scoliosis, Idiopathic, Adolescent Diagnosis
          Treatment Outcomes
          Adolescent: 13-18 years
      ab: Considerable variability exists in the surgical treatment and outcomes of adolescent idiopathic scoliosis (AIS). This is due to the lack of evidence-based treatment guidelines and outcome measures. Although clinical trials have been extolled as the highest form of evidence for evaluating treatment efficacy, the disadvantage of cost, time, lack of feasibility, and ethical considerations indicate a need for a new paradigm for evidence based research in this spinal deformity. High quality clinical databases offer an alternative approach for evidence-based research in medicine. So, we developed and established Scolisoft, an international, multidimensional and relational database designed to be a repository of surgical cases for AIS, and an active vehicle for standardized surgical information in a format that would permit qualitative and quantitative research and analysis. Here, we describe and discuss the utility of Scolisoft as a new paradigm for evidence-based research on AIS. Scolisoft was developed using dot.net platform and SQL server from Microsoft. All data is deidentified to protect patient privacy. Scolisoft can be accessed at (www.scolisoft.org). Collection of high quality data on surgical cases of AIS is a priority and processes continue to improve the database quality. The database currently has 67 registered users from 21 countries. To date, Scolisoft has 200 detailed surgical cases with pre, post, and follow up data. Scolisoft provides a structured process and practical information for surgeons to benchmark their treatment methods against other like treatments. Scolisoft is multifaceted and its use extends to education of health care providers in training, patients, ability to mine important data to stimulate research and quality improvement initiatives of healthcare organizations.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N