Estimated prevalence of people with learning disabilities: template for general practice.

Background: In 2001, a white paper set out a commitment to ensure that people with a learning disability receive equal access to health services, with an expectation that general practices would have identified all people with a learning disability registered with the practice by June 2004.Aim: To o...

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Published in:British Journal of General Practice Vol. 58; no. 551; pp. 423 - 429
Main Authors: Allgar V, Mir G, Evans J, Marshall J, Cottrell D, Heywood P, Emerson E, Allgar, Victoria, Mir, Ghazala, Evans, Joyce, Marshall, Joyce, Cottrell, David, Heywood, Phil, Emerson, Eric
Format: research Journal Article
Published: Royal College of General Practitioners Jun2008
Online Access:View this record in EBSCOhost
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      dt: Jun2008
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      pub: Royal College of General Practitioners
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        atl: Estimated prevalence of people with learning disabilities: template for general practice.
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        au:
          Allgar V
          Mir G
          Evans J
          Marshall J
          Cottrell D
          Heywood P
          Emerson E
          Allgar, Victoria
          Mir, Ghazala
          Evans, Joyce
          Marshall, Joyce
          Cottrell, David
          Heywood, Phil
          Emerson, Eric
        affil: Hull and York Medical School, University of York
      sug:
        subj:
          Family Practice Statistics and Numerical Data
          Health Services Accessibility Statistics and Numerical Data
          Health Services Needs and Demand Statistics and Numerical Data
          Learning Disorders Epidemiology
          Patient Record Systems
          England
          Family Practice
          Health Services Accessibility Administration
          Patient Record Systems Administration
          Prevalence
          Prospective Studies
          Human
      ab: Background: In 2001, a white paper set out a commitment to ensure that people with a learning disability receive equal access to health services, with an expectation that general practices would have identified all people with a learning disability registered with the practice by June 2004.Aim: To outline the development of a template to create practice-based registers of people with learning disabilities in general practice.Design Of Study: The study was prospective, employing a template to identify patients in general practice with a learning disability. The study used capture-recapture methodology to estimate the prevalence of learning disability in the population.Setting: General practices in Leeds.Method: A template was developed that uses Read code searches of practices' electronic medical records, along with practice knowledge to identify patients who have a learning disability.Results: The tool was piloted in 30 general practices in Leeds and validated against a city-wide database of people with learning disability. There was a wide variation between the practices in terms of how many people were identified, with the average being 0.4% of the practice population. Combined with validation from the city-wide database, this increased to 0.7%.Conclusion: The template provides a valuable tool for general practices to begin developing a practice-based register of patients with a learning disability. This is particularly timely in view of the revised General Medical Services contract Quality and Outcomes Framework indicator, stimulating practices to produce a register of patients with learning disability. Use of a common definition for learning disability is needed to improve consistency in identification across practices.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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