Development of a Video-based Evaluation Tool in Rett Syndrome.

This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. N...

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Publicado en:Journal of Autism & Developmental Disorders Vol. 37; no. 9; pp. 1636 - 1647
Autores principales: Fyfe S, Downs J, McIlroy O, Burford B, Lister J, Reilly S, Laurvick CL, Philippe C, Msall M, Kaufmann WE, Ellaway C, Leonard H
Formato: research Journal Article
Publicado: Springer Nature Oct2007
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Springer Nature
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        atl: Development of a Video-based Evaluation Tool in Rett Syndrome.
      aug:
        au:
          Fyfe S
          Downs J
          McIlroy O
          Burford B
          Lister J
          Reilly S
          Laurvick CL
          Philippe C
          Msall M
          Kaufmann WE
          Ellaway C
          Leonard H
        affil: Curtin University of Technology, Perth, WA, Australia.
      sug:
        subj:
          Rett Syndrome Diagnosis
          Videorecording
          Adolescence
          Adult
          Child
          Diagnosis, Differential
          Female
          Male
          Movement Disorders Diagnosis
          Movement Disorders Etiology
          Phenotype
          Pilot Studies
          Rett Syndrome Complications
          Human
          Adolescent: 13-18 years
          Adult: 19-44 years
          Child: 6-12 years
          Female
          Male
      ab: This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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