'YOU DON'T MAKE GENETIC TEST DECISIONS FROM ONE DAY TO THE NEXT'- USING TIME TO PRESERVE MORAL SPACE.
The part played by time in ethics is often taken for granted, yet time is essential to moral decision making. This paper looks at time in ethical decisions about having a genetic test. We use a patient-centred approach, combining empirical research methods with normative ethical analysis to investig...
| Publicado en: | Bioethics Vol. 21; no. 4; pp. 208 - 218 |
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| Autores principales: | , , |
| Formato: | research Journal Article |
| Publicado: |
Wiley-Blackwell
May2007
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105833642&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105833642 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02699702 6PJ jtl: Bioethics issn: 02699702 maglogo: Y pubinfo: dt: May2007 vid: 21 iid: 4 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 105833642 105833642 2009542920 10.1111/j.1467-8519.2007.00546.x NLM17845479 105833642 ppf: 208 ppct: 10 formats: fmt: @attributes: type: P tig: atl: 'YOU DON'T MAKE GENETIC TEST DECISIONS FROM ONE DAY TO THE NEXT'- USING TIME TO PRESERVE MORAL SPACE. aug: au: SCULLY JL PORZ R REHMANN-SUTTER C affil: School of Geography, Politics and Sociology, Newcastle University, 5th floor Claremont Bridge, Claremont Road, Newcastle upon Tyne, NE1 7RU sug: subj: Decision Making Genetic Screening Psychosocial Factors Huntington's Disease Prenatal Diagnosis Psychosocial Factors Female Genetic Screening Ethical Issues Huntington's Disease Diagnosis Huntington's Disease Psychosocial Factors Interviews Middle Age Morals Prenatal Diagnosis Ethical Issues Time Factors Human Middle Aged: 45-64 years Female ab: The part played by time in ethics is often taken for granted, yet time is essential to moral decision making. This paper looks at time in ethical decisions about having a genetic test. We use a patient-centred approach, combining empirical research methods with normative ethical analysis to investigate the patients' experience of time in (i) prenatal testing of a foetus for a genetic condition, (ii) predictive or diagnostic testing for breast and colon cancer, or (iii) testing for Huntington's disease (HD). We found that participants often manipulated their experience of time, either using a stepwise process of microdecisions to extend it or, under the time pressure of pregnancy, changing their temporal 'depth of field'. We discuss the implications of these strategies for normative concepts of moral agency, and for clinical ethics. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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