An intervention for parents of children with epilepsy and significant learning problems: lessons learned from a feasibility study.
Children with epilepsy often experience significant learning, mental health, and behavior problems that affect their quality of life. Moreover, their parents report high rates of stress. The objectives of this article are to describe the development of a theory-based cognitive behavioral interventio...
| Published in: | Journal of the American Psychiatric Nurses Association Vol. 13; no. 3; pp. 146 - 153 |
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| Format: | clinical trial research tables/charts Journal Article |
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Sage Publications Inc.
Jun/Jul2007
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105917432&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105917432 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10783903 DPZ jtl: Journal of the American Psychiatric Nurses Association issn: 10783903 maglogo: Y pubinfo: dt: Jun/Jul2007 vid: 13 iid: 3 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 105917432 25816761 2009628867 10.1177/1078390307303747 105917432 ppf: 146 ppct: 7 formats: tig: atl: An intervention for parents of children with epilepsy and significant learning problems: lessons learned from a feasibility study. aug: au: Buelow JM affil: Assistant Professor of Nursing, Indiana University School of Nursing, Indianapolis, IN; jbuelow@iupui.edu sug: subj: Cognitive Therapy Epilepsy In Infancy and Childhood Intellectual Disability Parents of Children with Disabilities Education Parents of Children with Disabilities Psychosocial Factors Patient Advocacy Adolescence Adult Child Content Analysis Content Validity Focus Groups Funding Source Intervention Trials Interview Guides Interviews Qualitative Studies Human Adolescent: 13-18 years Adult: 19-44 years Child: 6-12 years ab: Children with epilepsy often experience significant learning, mental health, and behavior problems that affect their quality of life. Moreover, their parents report high rates of stress. The objectives of this article are to describe the development of a theory-based cognitive behavioral intervention for parents of these children, changes made to the program based on content validity testing, and the lessons learned from implementation of a feasibility trial. The intervention was designed to foster parents' skills and confidence in advocating for their children when interacting with health care professionals and school personnel and to help parents identify community resources. Four mothers participated in the program to establish feasibility and usability. Using qualitative analysis of discussions following each phase of the intervention, we learned that parents needed more time for epilepsy education and interacting with one another and that the intervention should emphasize forming partnerships with health care and school professionals. pubtype: Academic Journal doctype: clinical trial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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