Clinical trial resources on the internet must be designed to reach underrepresented minorities.
Purpose: Internet-based clinical trial information services are being developed to increase recruitment to studies. However, there are limited data that evaluate their ability to reach elderly and underrepresented minority populations. This study was designed to evaluate the ability of an establishe...
| Published in: | Cancer Journal Vol. 12; no. 6; pp. 475 - 482 |
|---|---|
| Main Authors: | , , , , , , , , , , , , , |
| Format: | research tables/charts Journal Article |
| Published: |
Lippincott Williams & Wilkins
Nov/Dec2006
|
| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106199266&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 106199266 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15289117 4U5 jtl: Cancer Journal issn: 15289117 maglogo: N pubinfo: dt: Nov/Dec2006 vid: 12 iid: 6 pid: 5086 pub: Lippincott Williams & Wilkins place: Baltimore, Maryland artinfo: ui: 106199266 NLM17207317 2009510966 10.1097/00130404-200611000-00007 NLM17207317 106199266 ppf: 475 ppct: 7 formats: fmt: @attributes: type: P tig: atl: Clinical trial resources on the internet must be designed to reach underrepresented minorities. aug: au: Wilson JJ Mick R Wei SJ Rustgi AK Markowitz SD Hampshire M Metz JM Wilson, John J Mick, Rosemarie Wei, S Jack Rustgi, Anil K Markowitz, Sanford D Hampshire, Maggie Metz, James M affil: Fox Chase Virtua Health Cancer Treatment Center, Voorhies, New Jersey 08043, USA sug: subj: Clinical Trials Internet Minority Groups Research Subject Recruitment African Americans Female Funding Source Hispanic Americans Male Middle Age Human Middle Aged: 45-64 years Female Male ab: Purpose: Internet-based clinical trial information services are being developed to increase recruitment to studies. However, there are limited data that evaluate their ability to reach elderly and underrepresented minority populations. This study was designed to evaluate the ability of an established clinical trials registry to reach these populations based on expected Internet use.Patients and Methods: This study compares general Internet users to participants who enrolled in an Internet based colorectal cancer clinical trials registry established by OncoLink (www.oncolink.org) and the National Colorectal Cancer Research Alliance. Observed rates of demographic groupings were compared to those established for general Internet users.Results: Two thousand, four hundred and thirty-seven participants from the continental United States used the Internet to register for the database. New England, the Mid-Atlantic region, and the Southeast had the highest relative frequency of participation in the database, whereas the Upper Midwest, California, and the South had the lowest rates. Compared to general Internet users, there was an overrepresentation of women (73% vs. 50%) and participants over 55 years old (27% vs. 14%). However, there was an underrepresentation of minorities (10.3% vs. 22%), particularly African Americans (3.1% vs. 8%) and Hispanics (2.8% vs. 9%).Discussion: The Internet is a growing medium for registry into clinical trials databases. However, even taking into account the selection bias of Internet accessibility, there are still widely disparate demographics between general Internet users and those registering for clinical trials, particularly the underrepresentation of minorities. Internet-based educational and recruitment services for clinical trials must be designed to reach these underrepresented minorities to avoid selection biases in future clinical trials. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|