Imagen de Portada
Código QR

Challenges and strategies of the Genetics Home Reference.

Objective: This paper focuses on the first two years of operation of Genetics Home Reference (GHR), a Web-based resource <http://www.ghr.nlm.nih.gov> for the general public that helps to explain the health implications of findings from the Human Genome Project. Methods and Findings: Key challenges o...

Descripción completa

Publicado en:Journal of the Medical Library Association Vol. 94; no. 3; pp. 336 - 343
Autores principales: Mitchell JA, Fomous C, Fun J
Formato: tables/charts Journal Article
Publicado: University of Pittsburgh, University Library System Jul2006
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106207220&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 106207220
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        15365050
        PI8
      jtl: Journal of the Medical Library Association
      issn: 15365050
      maglogo: N
    pubinfo:
      dt: Jul2006
      vid: 94
      iid: 3
      pid: 60406
      pub: University of Pittsburgh, University Library System
      place: Pittsburgh, Pennsylvania
    artinfo:
      ui:
        106207220
        106207220
        2009269840
        NLM16888669
        106207220
      ppf: 336
      ppct: 7
      formats:
        fmt:
          @attributes:
            type: P
      tig:
        atl: Challenges and strategies of the Genetics Home Reference.
      aug:
        au:
          Mitchell JA
          Fomous C
          Fun J
        affil: 26 South 2000 East, Health Sciences Education Building Suite 5700, Department of Medical Informatics, University of Utah, Salt Lake City, Utah.
      sug:
        subj:
          Consumer Health Information
          Genetics, Medical Education
          Genomics Education
          Resource Databases
          World Wide Web
          Data Mining
          Feedback
          Medline
          National Library of Medicine (U.S.)
          Program Development
          Website Development
      ab: Objective: This paper focuses on the first two years of operation of Genetics Home Reference (GHR), a Web-based resource <http://www.ghr.nlm.nih.gov> for the general public that helps to explain the health implications of findings from the Human Genome Project. Methods and Findings: Key challenges of Web-based consumer health communication encountered in the growth and maintenance of GHR are discussed: prioritizing topics for GHR, streamlining the development process while keeping genetic information accurate, and designing a system that helps consumers navigate complex genetic relationships. Various strategies are used to address these challenges. Tying content development to topics of national priority and addressing topics requested by users makes the site increasingly important for both consumers and health professionals. Informatics methods are essential for quality control, particularly for genetic information that changes frequently. Indexing and hierarchical browsing features help to facilitate navigation. Conclusions: GHR is a credible, dynamic Website that uses lay language to explain the effects of genetic variation on human health. Informatics strategies are key to effective management of a large and expanding body of genetics information. Feedback from formal and informal sources indicates increasing usage and favorable acceptance of GHR.
      pubtype: Academic Journal
      doctype:
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N