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Assessment of psycho-educational needs in a clinical sample of children with sickle cell disease.

Sickle cell disease (SCD) is associated with impaired cognitive and academic functioning, yet prevalence rates of educational needs and accommodations are not known. The Hematology-Oncology Psycho-Educational Needs Assessment was administered to 72 parents of youth, ages 5 to 17, with SCD. Half of t...

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Published in:Children's Health Care Vol. 34; no. 2; pp. 133 - 149
Main Authors: Peterson CC, Palermo TM, Swift E, Beebe A, Drotar D
Format: questionnaire/scale research tables/charts Journal Article
Published: Taylor & Francis Ltd Spring2005
Online Access:View this record in EBSCOhost
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      dt: Spring2005
      vid: 34
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1207/s15326888chc3402_4
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        atl: Assessment of psycho-educational needs in a clinical sample of children with sickle cell disease.
      aug:
        au:
          Peterson CC
          Palermo TM
          Swift E
          Beebe A
          Drotar D
        affil: Rainbow Babies and Children's Hospital, Case Western Reserve University
      sug:
        subj:
          Anemia, Sickle Cell
          Information Needs
          Needs Assessment
          Patient Education
          Psychoeducation
          Adolescence
          Chi Square Test
          Child
          Child, Preschool
          Descriptive Statistics
          Female
          Intelligence
          Interviews
          Male
          Parents Education
          Questionnaires
          Funding Source
          Human
          Adolescent: 13-18 years
          Child: 6-12 years
          Child, Preschool: 2-5 years
          Female
          Male
      ab: Sickle cell disease (SCD) is associated with impaired cognitive and academic functioning, yet prevalence rates of educational needs and accommodations are not known. The Hematology-Oncology Psycho-Educational Needs Assessment was administered to 72 parents of youth, ages 5 to 17, with SCD. Half of the parents identified concerns about their children's learning; however, only 36% had undergone testing for learning problems, and only 26% had individualized education plans. Many parents (33%) reported concerns about attention/memory, and 36% of youth had failed a grade. Of 33 participants referred for neuropsychological evaluation, only 13 completed testing, which revealed below-average IQ and achievement scores. Considerable morbidity was reported; one third of participants missed over 20 school days per year, and 42% reported disease-related difficulties participating in school. Many youth with SCD present cognitive, academic, and functional difficulties, for which universal screening may promote earlier detection and psycho-educational intervention.
      pubtype: Academic Journal
      doctype:
        questionnaire/scale
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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