Using the Internet? The experiences of parents of disabled children.

BACKGROUND: Research has offered consistent evidence that the provision of crucial information to parents of disabled children, at a time when they need it and in a form that they can use, is an intractable problem. This makes it important to develop new and effective approaches to information prese...

Descripción completa

Detalles Bibliográficos
Publicado en:Child: Care, Health & Development Vol. 31; no. 5; pp. 507 - 516
Autores principales: Blackburn C, Read J
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Sep2005
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106381916&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 106381916
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        03051862
        6NX
      jtl: Child: Care, Health & Development
      issn: 03051862
      maglogo: Y
    pubinfo:
      dt: Sep2005
      vid: 31
      iid: 5
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
    artinfo:
      ui:
        106381916
        106381916
        2009058565
        10.1111/j.1365-2214.2005.00541.x
        NLM16101645
        106381916
      ppf: 507
      ppct: 9
      formats:
        fmt:
          @attributes:
            type: P
      tig:
        atl: Using the Internet? The experiences of parents of disabled children.
      aug:
        au:
          Blackburn C
          Read J
        affil: School of Health and Social Studies, University of Warwick, Coventry, UK; c.m.blackburn@warwick.ac.uk
      sug:
        subj:
          Access to Information
          Internet Utilization
          Parents of Children with Disabilities
          Funding Source
          Adolescence
          Adult
          Aged
          Chi Square Test
          Child
          Cross Sectional Studies
          Female
          Internet Economics
          Male
          Middle Age
          Questionnaires
          Sample Size
          Socioeconomic Factors
          United Kingdom
          Yates' Continuity Correction
          Human
          Adolescent: 13-18 years
          Adult: 19-44 years
          Aged: 65+ years
          Child: 6-12 years
          Middle Aged: 45-64 years
          Female
          Male
      ab: BACKGROUND: Research has offered consistent evidence that the provision of crucial information to parents of disabled children, at a time when they need it and in a form that they can use, is an intractable problem. This makes it important to develop new and effective approaches to information presentation, distribution and delivery. The Internet has been put forward as a medium through which families' needs for information and services can be met. This paper looks at parents of disabled children's experience of using it. METHODS: A cross-sectional survey of 3014 adult carers, of which 788 were carers of disabled children aged 0-17. Data were collected using a postal questionnaire. RESULTS: A high proportion (75%) had previously used the Internet. Of these, 63% were frequent users and 91% were using it at home. Popular uses were emailing, obtaining information about caring, ordering equipment and shopping online. Despite positive benefits, users experienced problems relating to technical issues and equipment and system design. Lack of time owing to caring and other circumstances was an issue for over half of all users. Never users were more likely to be living in rented accommodation, be unemployed and not have a PC at home. Reasons for not using the Internet included lack of access to equipment, cost and lack of skill. CONCLUSIONS: For some parents the Internet is a viable and flexible medium for accessing useful information and services. However, caution about the extent to which it becomes the primary means for delivering information is needed. Technical problems and lack of time can make it difficult to search for complex information. The 'digital divide' between users and non-users makes it crucial that issues of cost, lack of equipment and skill be addressed. Information needs to be made available in other forms to ensure that those who cannot or do not wish to use the Internet are not socially excluded.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N