A parental perspective on living with a chronically ill child: a qualitative study.
This study explored parents' experience of living with a child with Juvenile Chronic Arthritis (JCA). Taped, open interviews with 22 parents (6 fathers) were transcribed and analyzed using the constant comparative method for grounded theory. A core category, labeled 'parental vigilance,' and two rel...
| Publicado en: | Families, Systems & Health: The Journal of Collaborative Family HealthCare Vol. 21; no. 2; pp. 193 - 205 |
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| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
American Psychological Association
Summer2003
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106560987&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 106560987 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10917527 5WT jtl: Families, Systems & Health: The Journal of Collaborative Family HealthCare issn: 10917527 maglogo: N pubinfo: dt: Summer2003 vid: 21 iid: 2 pid: 34 pub: American Psychological Association place: Washington, District of Columbia artinfo: ui: 106560987 106560987 2005016257 10.1037/1091-7527.21.2.193 106560987 ppf: 193 ppct: 12 formats: fmt: @attributes: type: P tig: atl: A parental perspective on living with a chronically ill child: a qualitative study. aug: au: Sallfors C Hallberg LR affil: The Nordic School of Public Health, S-402, 42 Goteborg, Sweden; Christina@nhv.se sug: subj: Arthritis, Juvenile Rheumatoid Psychosocial Factors Coping Parents Psychosocial Factors Adaptation, Psychological Adolescence Audiorecording Child Constant Comparative Method Female Grounded Theory Interviews Male Parental Role Professional-Family Relations Qualitative Studies Human Adolescent: 13-18 years Child: 6-12 years Female Male ab: This study explored parents' experience of living with a child with Juvenile Chronic Arthritis (JCA). Taped, open interviews with 22 parents (6 fathers) were transcribed and analyzed using the constant comparative method for grounded theory. A core category, labeled 'parental vigilance,' and two related categories labeled 'emotional challenges' and 'continual adjustment' were identified, describing the parents' management of illness-related demands, the child's vulnerability, and others' misunderstandings. Seeking information, using day-to-day strategies, seeking social support, and communicating with others are the most efficient strategies adopted by the parents. The findings indicate complementary parental roles labeled 'the managing mother' and 'the waiting father.' The study contributes to a deeper understanding o f experienced parental stress in daily living with a chronically ill child, and reflects traditional gender-based parenting roles, complementary and necessary for the family. The findings have implications for professionals who provide care to children with JCA. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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