Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions.

Because the introduction of genetic testing into clinical medicine and public health creates concerns for the welfare of individuals affected with genetic conditions, those individuals should have a role in policy decisions about testing. Mechanisms for promoting participation range from membership...

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Bibliographic Details
Published in:American Journal of Public Health Vol. 95; no. 1; pp. 35 - 42
Main Authors: Gollust SE, Apse K, Fuller BP, Miller S, Biesecker BB
Format: case study Journal Article
Published: American Public Health Association Jan2005
Online Access:View this record in EBSCOhost