Health status and health-related quality of life in a population-based sample of neonatal intensive care unit graduates.
OBJECTIVE: To measure the health status (HS) and health-related quality of life (HRQL) of preschoolers who were admitted to a neonatal intensive care unit (NICU) at birth and their family caregivers and to investigate differences in HS and HRQL in relation to gestational age and major morbidity expe...
| Publicado en: | Pediatrics Vol. 113; no. 3; pp. 594 - 601 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
American Academy of Pediatrics
Mar2004
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106626872&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 106626872 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 00314005 PDT jtl: Pediatrics issn: 00314005 maglogo: N pubinfo: dt: Mar2004 vid: 113 iid: 3 pid: 1659 pub: American Academy of Pediatrics place: Elk Grove Village, Illinois artinfo: ui: 106626872 106626872 2005077835 10.1542/peds.113.3.594 NLM14993555 106626872 ppf: 594 ppct: 7 formats: tig: atl: Health status and health-related quality of life in a population-based sample of neonatal intensive care unit graduates. aug: au: Klassen AF Lee SK Raina P Chan HWP Matthew D Brabyn D affil: Centre for Community Child Health Research, Department of Pediatrics, University of British Columbia, L408, 4480 Oak St, Vancouver, BC V6H 3V4; afk@interchange.ubc.ca sug: subj: Health Status In Infancy and Childhood Intensive Care, Neonatal Quality of Life In Infancy and Childhood Analysis of Variance British Columbia Checklists Child Behavior Child Behavior Checklist Child, Preschool Clinical Assessment Tools Cross Sectional Studies Descriptive Statistics Female Gestational Age Health Status Indicators Infant, Newborn Intensive Care Units, Neonatal Kruskal-Wallis Test Male Mann-Whitney U Test Morbidity Multiple Logistic Regression Parents Psychosocial Factors Psychological Tests Questionnaires Record Review Retrospective Design Stress, Psychological Funding Source Survivors T-Tests Human Child, Preschool: 2-5 years Infant, Newborn: birth-1 month Female Male ab: OBJECTIVE: To measure the health status (HS) and health-related quality of life (HRQL) of preschoolers who were admitted to a neonatal intensive care unit (NICU) at birth and their family caregivers and to investigate differences in HS and HRQL in relation to gestational age and major morbidity experienced during the NICU stay. METHODS: Retrospective cross-sectional survey was conducted in the province of British Columbia, Canada. A total of 1140 of 2221 children who were admitted at birth to the 3 tertiary care NICUs in the province and 393 of 718 healthy full-term children recruited from 2 of these hospitals were studied. The main outcome measures were Infant and Toddler Quality of Life Questionnaire (ITQOL), Health Status Classification System Preschool Version (HSCS-PS), and Child Behavior Checklist/1.5-5 (CBCL) RESULTS: The overall response rate was 55%; the response rate for families that we located was 67.1%. NICU children differed from healthy children on the ITQOL in physical abilities, growth and development, temperament/moods, behavior, and general health perceptions, and caregivers differed on both parent-impact scales. On the HSCS-PS, proportionally more NICU children had a health problem in the following areas: sight, speech, getting around, using hands and fingers, taking care of self, learning and remembering, thinking and solving problems, pain and discomfort, general health, and behavior. The NICU sample reported more behavioral problems on the CBCL/1.5-5. Poorer HS and HRQL were reported for infants who were born at <27 weeks' gestation and for children who experienced > or =1 major morbidities during their NICU stay. CONCLUSIONS: Preschool-aged children with conditions that require NICU care and their family caregivers had poorer HS and HRQL in a range of domains compared with healthy children. There were also differences within the sample by gestational age and major morbidity. The differences in health were small using the ITQOL and CBCL/1.5-5 but larger using the HSCS-PS. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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