Using individualised communication for interviewing people with intellectual disability: a case study of user-centred research.
The importance of participative research methodologies is now widely acknowledged. A case study using individualised communication for interviewing people with intellectual disability in outcome and quality of life research is reported. The methodology and processes employed are described and lesson...
| Publicado en: | Journal of Intellectual & Developmental Disability Vol. 28; no. 1; pp. 5 - 24 |
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| Autores principales: | , |
| Formato: | case study research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Mar2003
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106713741&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 106713741 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13668250 DDI jtl: Journal of Intellectual & Developmental Disability issn: 13668250 maglogo: Y pubinfo: dt: Mar2003 vid: 28 iid: 1 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 106713741 106713741 2004046021 106713741 ppf: 5 ppct: 19 formats: fmt: @attributes: type: P tig: atl: Using individualised communication for interviewing people with intellectual disability: a case study of user-centred research. aug: au: Cambridge P Forrester-Jones R affil: The Tizard Centre, Beverley Farm, University of Kent at Canterbury, Kent CT2 7LZ, UK; P.Cambridge@ukc.ac.uk sug: subj: Communication Aids for Persons with Disabilities Utilization Intellectual Disability Action Research Collaboration Consent Female Interviews Methods Male Multivariate Analysis Privacy and Confidentiality Qualitative Studies United Kingdom Human Female Male ab: The importance of participative research methodologies is now widely acknowledged. A case study using individualised communication for interviewing people with intellectual disability in outcome and quality of life research is reported. The methodology and processes employed are described and lessons for the wider application of the model identified. In collaboration with Somerset Total Communication and local speech and language therapists, researchers from the Tizard Centre developed a flexible communication strategy for involving service users, drawing on core, local and individual vocabularies and using signs, graphic symbols and photographs to supplement spoken English. Individualised communication was used both to ascertain informed consent to participation in the research and to conduct the user interview. The initiative was part of a wider study looking at the outcomes and costs of community care 12 years on from de-institutionalisation. The approach was found to facilitate user participation compared with previous follow-ups, with wider lessons evident for user involvement. pubtype: Academic Journal doctype: case study research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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