'It was the hardest and most painful decision of my life!': seeking permanent out-of-home placement for sons and daughters with intellectual disabilities.

The issue of out-of-home placement for children with intellectual disabilities continues to receive significant research attention. This focus reflects the fact that some families continue to seek out-of-home placement for their children with intellectual disabilities despite anti-placement philosop...

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Publicado en:Journal of Intellectual & Developmental Disability Vol. 28; no. 2; pp. 99 - 112
Autores principales: Mirfin-Veitch B, Bray A, Ross N
Formato: research Journal Article
Publicado: Taylor & Francis Ltd Jun2003
Acceso en línea:Ver este registro en EBSCOhost
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        atl: 'It was the hardest and most painful decision of my life!': seeking permanent out-of-home placement for sons and daughters with intellectual disabilities.
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          Mirfin-Veitch B
          Bray A
          Ross N
        affil: Donald Beasley Institute, PO Box 6189, Dunedin, New Zealand; donald.beasley@stonebow.otago.ac.nz
      sug:
        subj:
          Decision Making, Family
          Institutionalization Psychosocial Factors
          Intellectual Disability In Infancy and Childhood
          Parents Psychosocial Factors
          Adolescence
          Audiorecording
          Caregiver Burden
          Child
          Child, Preschool
          Data Analysis Software
          Data Analysis, Statistical
          Female
          Infant
          Interviews
          Male
          Mothers Psychosocial Factors
          New Zealand
          Questionnaires
          Respite Care Psychosocial Factors
          Self Report
          Siblings Psychosocial Factors
          Support, Psychosocial
          Human
          Adolescent: 13-18 years
          Child: 6-12 years
          Child, Preschool: 2-5 years
          Infant: 1-23 months
          Female
          Male
      ab: The issue of out-of-home placement for children with intellectual disabilities continues to receive significant research attention. This focus reflects the fact that some families continue to seek out-of-home placement for their children with intellectual disabilities despite anti-placement philosophy and policy which currently inform disability support services. The present paper explores families' past experiences of seeking out-of-home placement for their relatives in an institutional facility. Data for the study were generated within the context of a longitudinal study on the deinstitutionalisation of a large institutional facility for people with intellectual disabilities. Families were interviewed at regular intervals throughout the resettlement process and were encouraged to talk about their views towards, and experiences of deinstitutionalisation, and their fears and aspirations regarding the new model of service to be delivered to their relatives. Families' past decision-making regarding out-of-home placement was also explored. One significant finding of this study was a shared story reported by families in terms of their past decisions to seek permanent out-of-home placement in an institutional facility. Critical elements of such decision-making are identified and presented in the context of current research on out-of-home placement.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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