Attitudes of people with disabilities toward physician-assisted suicide legislation: broadening the dialogue.
This article presents the methods, findings, and implications of a participatory action research project that attempted to shed additional light on the debate over death with dignity (DWD) or physician-assisted suicide (PAS) legislation. In-depth, qualitative interviews with forty-five physically di...
| Publicado en: | Journal of Health Politics, Policy & Law Vol. 28; no. 6; pp. 977 - 1002 |
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| Autores principales: | , , , , , , |
| Formato: | legal case research Journal Article |
| Publicado: |
Duke University Press
Dec2003
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106765549&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 106765549 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03616878 HPP jtl: Journal of Health Politics, Policy & Law issn: 03616878 maglogo: N pubinfo: dt: Dec2003 vid: 28 iid: 6 pid: 154 pub: Duke University Press place: Durham, North Carolina artinfo: ui: 106765549 2004134783 10.1215/03616878-28-6-977 NLM14756497 106765549 ppf: 977 ppct: 25 formats: fmt: @attributes: type: P tig: atl: Attitudes of people with disabilities toward physician-assisted suicide legislation: broadening the dialogue. aug: au: Fadem P Minkler M Perry M Blum K Moore LF Jr. Rogers J Williams L affil: University of California at Berkeley School of Public Health sug: subj: Attitude to Death Evaluation Persons with Disabilities Psychosocial Factors Suicide, Assisted Ethical Issues Suicide, Assisted Legislation and Jurisprudence Action Research Adult Aged Aged, 80 and Over Attitude Attitude Measures Audiorecording Autonomy California Coding Data Analysis Software Decision Making, Patient Discrimination Fear Female Grounded Theory Health Policy Interviews Male Middle Age Oregon Politics Public Opinion Qualitative Studies Questionnaires Snowball Sample Terminal Care Thematic Analysis United States Human Adult: 19-44 years Aged: 65+ years Aged, 80 & over Middle Aged: 45-64 years Female Male ab: This article presents the methods, findings, and implications of a participatory action research project that attempted to shed additional light on the debate over death with dignity (DWD) or physician-assisted suicide (PAS) legislation. In-depth, qualitative interviews with forty-five physically disabled residents of the San Francisco Bay Area, conducted by others with disabilities, revealed a wide breadth of opinions about and attitudes toward such legislation. For close to half of the participants, the desire for autonomy in making end-of-life decisions was a primary concern, yet fear that PAS legislation could violate this autonomy in various ways was a deep concern as well. Also reported were widespread accounts of disability-based discrimination and frequent expressions of fear about openly discussing positions that diverge from the official, publicly held opinions of disability leaders who oppose such legislation. The findings support those of a recent Harris poll demonstrating considerable diversity of opinion about PAS legislation among people with disabilities. The findings further suggest the need for additional research on the apparent disjunction between the diversity of attitudes held by those interviewed and the more unified position taken by many disability activists. Use of the study findings to promote greater dialogue within the community and to better position people with disabilities to take their place at the policy table also is discussed. In addition, the findings are seen as reinforcing the need for the public health community to become more engaged in this central ethical debate. pubtype: Academic Journal doctype: legal case research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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