What a pity I did not know it before! How cancer patients feel about the information they receive about fatigue.
In the course of a cancer trajectory, many patients suffer from distressing fatigue. In past years, research has shown that care givers tend to underestimate or even to ignore this frequent phenomenon. Despite increasing knowledge, fatigue seems to remain an orphan topic in symptom management. AIM:...
| Publicado en: | Pflege Vol. 15; no. 5; pp. 187 - 195 |
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| Autores principales: | , , , , |
| Formato: | research Journal Article |
| Publicado: |
Hogrefe AG
2002 Oct
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106826784&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 106826784 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10125302 IRQ jtl: Pflege issn: 10125302 maglogo: N pubinfo: dt: 2002 Oct vid: 15 iid: 5 pid: 15138 pub: Hogrefe AG artinfo: ui: 106826784 106826784 2003060249 NLM12465364 106826784 ppf: 187 ppct: 8 formats: tig: atl: What a pity I did not know it before! How cancer patients feel about the information they receive about fatigue. aug: au: Glaus A Frei IA Knipping C Ream E Browne N sug: subj: Cancer Patients Psychosocial Factors Fatigue Oncologic Care Patient Attitudes Information Needs Knowledge Health Personnel Switzerland England Convenience Sample Audiorecording Focus Groups Interviews Communication Barriers Disease Progression Qualitative Studies Human ab: In the course of a cancer trajectory, many patients suffer from distressing fatigue. In past years, research has shown that care givers tend to underestimate or even to ignore this frequent phenomenon. Despite increasing knowledge, fatigue seems to remain an orphan topic in symptom management. AIM: A qualitative research strategy was used to explore the perception of cancer patients regarding the awareness of fatigue in professionals and the way they deal with it. Patients also evaluated the usefulness of some currently available information material about fatigue. METHODS: The expert-opinion of cancer patients in Switzerland and England was analysed. Convenient sampling guided the selection process of seven patients in each country. A tape-recorded focus-group interview served as method to collect and transcribe data. Data were analysed according to the framework analyses by Richie & Spencer. RESULTS: Results were very similar in both countries. Patients stated a great need for more information regarding fatigue. They feel that care givers are not sufficiently aware of it and that a specific support is not part of current standard practice. The information material was well received and generally judged as very good and helpful. CONCLUSIONS: Communication barriers in professionals as well as in patients continue to exist. Patients wish to be better informed by care givers. The available information material serves well to support this information as they provide words for the unmentioned phenomenon. Far more professional fatigue education is needed to raise care givers' awareness. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: German refInfo: holdings: @attributes: islocal: N |
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