A cluster-randomised controlled trial of a patient-centred guidebook for patients with ulcerative colitis: effect on knowledge, anxiety and quality of life.

A randomised controlled trial was undertaken to evaluate the impact of a patient-centred, evidence-based guidebook on knowledge, anxiety and quality of life (QoL) in patients with ulcerative colitis. The information in the book was developed closely with patients and focused on their identified need...

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Publicado en:Health & Social Care in the Community Vol. 11; no. 1; pp. 64 - 73
Autores principales: Kennedy A, Robinson A, Hann M, Thompson D, Wilkin D
Formato: algorithm research tables/charts randomized controlled trial Journal Article
Publicado: Wiley-Blackwell Jan2003
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jan2003
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        10.1046/j.1365-2524.2003.00399.x
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        atl: A cluster-randomised controlled trial of a patient-centred guidebook for patients with ulcerative colitis: effect on knowledge, anxiety and quality of life.
      aug:
        au:
          Kennedy A
          Robinson A
          Hann M
          Thompson D
          Wilkin D
        affil: National Primary Care Research and Development Centre, University of Manchester, 5th Floor, Williamson Building, Manchester M13 9PL, UK
      sug:
        subj:
          Colitis, Ulcerative Education
          Health Knowledge Evaluation
          Patient Education Evaluation
          Adult
          Anxiety Evaluation
          Clinical Trials
          Colitis, Ulcerative Psychosocial Factors
          Confidence Intervals
          Correlation Coefficient
          Data Analysis Software
          Depression
          Descriptive Statistics
          England
          Funding Source
          Logistic Regression
          Multiple Regression
          Multivariate Analysis
          Outpatients
          Patient Centered Care
          Professional Practice, Evidence-Based
          Psychological Tests
          Quality of Life Evaluation
          Questionnaires
          Sample Size
          Scales
          Self Care
          Time Factors
          Human
          Adult: 19-44 years
      ab: A randomised controlled trial was undertaken to evaluate the impact of a patient-centred, evidence-based guidebook on knowledge, anxiety and quality of life (QoL) in patients with ulcerative colitis. The information in the book was developed closely with patients and focused on their identified needs. All 240 subjects in the study were on long-term follow-up for ulcerative colitis and were effectively responsible for the day-to-day management of their condition in the community. Outcomes were measured at 1 month and 9 months. Patients attended outpatient clinics at six hospitals: three hospitals were randomised to be control sites; and three were intervention sites where patients were given a copy of the guidebook. The results showed that patients receiving the guidebook demonstrated significantly better knowledge of their ulcerative colitis at 1 month, which persisted at 9 months, than patients in the control group. Anxiety and QoL scores were unchanged throughout. The present authors conclude that appropriate information is an essential prerequisite to greater patient involvement in chronic disease management. Patient-centred information increases knowledge without increasing anxiety and should be made available to patients through an appropriate health provider.
      pubtype: Academic Journal
      doctype:
        algorithm
        research
        tables/charts
        randomized controlled trial
        Journal Article
      ougenre: Article
    language: English
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