Toward assessing family outcomes of service delivery: validation of a family quality of life survey.

BACKGROUND: The concept of family quality of life (QoL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The present study describes the process of developing a tool to measure family QoL. METHODS AND RESULTS: A total of 1197 respondents p...

Descripción completa

Detalles Bibliográficos
Publicado en:Journal of Intellectual Disability Research Vol. 47; no. 4/5; pp. 367 - 385
Autores principales: Park J, Hoffman L, Marquis J, Turnbull AP, Poston D, Mannan H, Wang M, Nelson LL
Formato: questionnaire/scale research tables/charts Journal Article
Publicado: Wiley-Blackwell May2003
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=106880245&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 106880245
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        09642633
        EUL
      jtl: Journal of Intellectual Disability Research
      issn: 09642633
      maglogo: Y
    pubinfo:
      dt: May2003
      vid: 47
      iid: 4/5
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
    artinfo:
      ui:
        106880245
        106880245
        2003139499
        10.1046/j.1365-2788.2003.00497.x
        NLM12787167
        106880245
      ppf: 367
      ppct: 18
      formats:
        fmt:
          @attributes:
            type: P
      tig:
        atl: Toward assessing family outcomes of service delivery: validation of a family quality of life survey.
      aug:
        au:
          Park J
          Hoffman L
          Marquis J
          Turnbull AP
          Poston D
          Mannan H
          Wang M
          Nelson LL
        affil: Department of Special Education, Ewha University, DaeHyun Dong 11-2, Seoul, Korea 120-750; jpark@ewha.ac.kr
      sug:
        subj:
          Caregiver Burden Evaluation
          Children with Disabilities
          Family Psychosocial Factors
          Instrument Validation
          Quality of Life Evaluation
          Surveys
          Questionnaires
          Coefficient alpha
          Conceptual Framework
          Constant Comparative Method
          Data Analysis Software
          Descriptive Statistics
          Factor Analysis
          Female
          Focus Groups
          Interviews
          Mail
          Male
          Systematic Random Sample
          Validation Studies
          Human
          Female
          Male
      ab: BACKGROUND: The concept of family quality of life (QoL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The present study describes the process of developing a tool to measure family QoL. METHODS AND RESULTS: A total of 1197 respondents participated in a national field test. Through factor analysis, the survey was refined in several ways: (1) the preliminary 10-domain structure was reduced to a five-domain structure; (2) a total of 41 items were selected for the revised survey; and (3) wordings were clarified. CONCLUSIONS: The implications for future research and practice are discussed.
      pubtype: Academic Journal
      doctype:
        questionnaire/scale
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N