Transitioning adolescents with sickle cell disease to adult-centered care.
Efforts have been made to formalize transitioning of adolescents with chronic health conditions such as sickle cell disease (SCD), from child-centered care (CCC) to adult-centered care (ACC). A dearth of literature exists that examines the transition of adolescents with SCD or offers guidance for tr...
| Publicado en: | Pediatric Nursing Vol. 25; no. 5; pp. 479 - 491 |
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| Autores principales: | , |
| Formato: | CEU exam questions research tables/charts Journal Article |
| Publicado: |
Jannetti Publications, Inc.
Sep/Oct99
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=107087928&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 107087928 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 00979805 21Z jtl: Pediatric Nursing issn: 00979805 maglogo: N pubinfo: dt: Sep/Oct99 vid: 25 iid: 5 pid: 4135 pub: Jannetti Publications, Inc. place: Pitman, New Jersey artinfo: ui: 107087928 107087928 2000012591 NLM12024394 107087928 ppf: 479 ppct: 12 formats: fmt: @attributes: type: T tig: atl: Transitioning adolescents with sickle cell disease to adult-centered care. aug: au: Hauser, Elizabeth S. Dorn, Louise affil: Research Coordinator and Clinical Specialist, Pathways Center for Children, Glenview, IL sug: subj: Anemia, Sickle Cell In Adolescence Health Services In Adulthood Attitude In Adolescence Adult Audiorecording Female Child Health Services Utilization Black Persons Pilot Studies Focus Groups Midwestern United States Parents Parental Attitudes Semi-Structured Interview Adolescence Life Expectancy Patient Education Anemia, Sickle Cell Education Patient Autonomy In Adolescence Accountability In Adolescence Attitude of Health Personnel Education, Continuing (Credit) Continuity of Patient Care In Adolescence Funding Source Human Adult: 19-44 years Adolescent: 13-18 years Female ab: Efforts have been made to formalize transitioning of adolescents with chronic health conditions such as sickle cell disease (SCD), from child-centered care (CCC) to adult-centered care (ACC). A dearth of literature exists that examines the transition of adolescents with SCD or offers guidance for transitioning. This study sought to explore concerns, expectations, and needs regarding the transition from CCC to ACC and to generate a framework for transitioning. Separate focus groups were conducted with adolescents (n=22), their parents (n=22), and practitioners (n=8). Focus group interviews revealed that concerns, expectations, and needs for adolescents and their parents were parallel. Adolescents and their parents had concerns about: (a) leaving a familiar setting and physician whom they trusted, (b) going to an adult provider who may or may not be familiar with managing sickle cell disease, and (c) establishing new family roles. Practitioners affirm the need for transitioning that prepares the adolescents and their families for ACC. Findings led to a draft framework for transitioning that which will be tested at a later date. The framework is based on an ecological perspective that includes physiologic, developmental and psychosocial, and educational/vocational components. pubtype: Academic Journal doctype: CEU exam questions research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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