Paying research subjects: participants' perspectives.
Objective: To explore the opinions of unpaid healthy volunteers on the payment of research subjects.Design: Prospective cohort.Setting: Southern Alberta, Canada.Participants: Medically eligible persons responding to recruiting advertisements for a randomised vaccine trial were invited to take part i...
| Publicado en: | Journal of Medical Ethics Vol. 26; no. 2; pp. 126 - 131 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
BMJ Publishing Group
Apr2000
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=107114290&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 107114290 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03066800 MET jtl: Journal of Medical Ethics issn: 03066800 maglogo: N pubinfo: dt: Apr2000 vid: 26 iid: 2 pid: 8280 pub: BMJ Publishing Group artinfo: ui: 107114290 107114290 NLM10786324 2000038676 10.1136/jme.26.2.126 NLM10786324 107114290 ppf: 126 ppct: 5 formats: tig: atl: Paying research subjects: participants' perspectives. aug: au: Russell ML Moralejo DG Burgess ED Russell, M L Moralejo, D G Burgess, E D affil: University of Calgary, Canada sug: subj: Research Subjects Economics Exploratory Research Research Subject Recruitment Questionnaires Data Analysis Software Descriptive Statistics Coding Funding Source Human ab: Objective: To explore the opinions of unpaid healthy volunteers on the payment of research subjects.Design: Prospective cohort.Setting: Southern Alberta, Canada.Participants: Medically eligible persons responding to recruiting advertisements for a randomised vaccine trial were invited to take part in a study of informed consent at the point at which they formally consented or refused trial participation. Of 72 invited, 67 (62 trial consenters, 5 trial refusers) returned questionnaires at baseline and 54 at follow-up.Outcome Measures: Proportions of persons who agreed or disagreed with three close-ended statements on the payment of research subjects; themes and categories identified by content analysis of responses to an open-ended question.Results: A minority (43.3%) agreed with paying either patient or healthy volunteer participants. Opinions did not change over time. Participants' comments addressed: benefits and drawbacks to research participation; benefits and drawbacks to paying research participants; conditions under which payment of research subjects would be acceptable, and the nature of acceptable recognition. Acceptable conditions were to improve problematic recruitment, to reimburse costs, and to recognise participants, particularly for their time investment. Both non-monetary and monetary recognition of volunteers were thought to be appropriate.Conclusions: Most unpaid volunteers disagreed with paying research participants. The themes arising from their comments are similar to those that have been raised by ethicists and suggest that recognising the time and effort of participants should receive greater emphasis than presently occurs. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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