FRAMING HEALTH MATTERS. From Subject to Participant: Ethics and the Evolving Role of Community in Health Research.
Belmont Report principles focus on the well-being of the research subject, yet community-engaged investigators often eschew the role of subject for that of participant. We conducted semistructured interviews with 29 community and academic investigators working on 10 community-engaged studies. Interv...
| Publicado en: | American Journal of Public Health Vol. 105; no. 5; pp. 900 - 909 |
|---|---|
| Autores principales: | , , , |
| Formato: | Journal Article |
| Publicado: |
American Public Health Association
May2015
|
| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=107786090&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 107786090 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00900036 APH jtl: American Journal of Public Health issn: 00900036 maglogo: N pubinfo: dt: May2015 vid: 105 iid: 5 pid: 44 pub: American Public Health Association artinfo: ui: 107786090 10.2105/AJPH.2014.302403 ppf: 900 ppct: 9 formats: tig: atl: FRAMING HEALTH MATTERS. From Subject to Participant: Ethics and the Evolving Role of Community in Health Research. aug: au: Bromley, Elizabeth Mikesell, Lisa Jones, Felica Khodyakov, Dmitry su: California Community health services Ethics Interviewing Clinical medicine research Research funding Independent living sug: subj: Community health services Ethics Interviewing California Community health centres Other local, municipal and regional public administration Other Individual and Family Services Residential Mental Health and Substance Abuse Facilities All Other Outpatient Care Centers Clinical medicine research Research funding Independent living ab: Belmont Report principles focus on the well-being of the research subject, yet community-engaged investigators often eschew the role of subject for that of participant. We conducted semistructured interviews with 29 community and academic investigators working on 10 community-engaged studies. Interviews elicited perspectives on ethical priorities and ethical challenges. Interviewees drew on the Belmont Report to describe 4 key principles of ethical community-engaged research (embodying ethical action, respecting participants, generalizing beneficence, and negotiating justice). However, novel aspects of the participant role were the source of most ethical challenges. We theorize that the shift in ethical focus from subject to participant will pose new ethical dilemmas for community-engaged investigators and for other constituents interested in increasing community involvement in health research. pubtype: Academic Journal doctype: Journal Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
|---|