Recruiting intergenerational African American males for biomedical research Studies: a major research challenge.

The health and well-being of all individuals, independent of race, ethnicity, or gender, is a significant public health concern. Despite many improvements in the status of minority health, African American males continue to have the highest age-adjusted mortality rate of any race-sex group in the Un...

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Publicado en:Journal of the National Medical Association Vol. 103; no. 6; pp. 480 - 488
Autores principales: Byrd GS, Edwards CL, Kelkar VA, Phillips RG, Byrd JR, Pim-Pong DS, Starks TD, Taylor AL, Mckinley RE, Li YJ, Pericak-Vance M, Byrd, Goldie S, Edwards, Christopher L, Kelkar, Vinaya A, Phillips, Ruth G, Byrd, Jennifer R, Pim-Pong, Dora Som, Starks, Takiyah D, Taylor, Ashleigh L, Mckinley, Raechel E
Formato: research Journal Article
Publicado: Elsevier B.V. 2011 Jun
Acceso en línea:Ver este registro en EBSCOhost
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      dt: 2011 Jun
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        atl: Recruiting intergenerational African American males for biomedical research Studies: a major research challenge.
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          Byrd GS
          Edwards CL
          Kelkar VA
          Phillips RG
          Byrd JR
          Pim-Pong DS
          Starks TD
          Taylor AL
          Mckinley RE
          Li YJ
          Pericak-Vance M
          Byrd, Goldie S
          Edwards, Christopher L
          Kelkar, Vinaya A
          Phillips, Ruth G
          Byrd, Jennifer R
          Pim-Pong, Dora Som
          Starks, Takiyah D
          Taylor, Ashleigh L
          Mckinley, Raechel E
        affil: Department of Biology, North Carolina A&T State University, College of Arts & Sciences, A411 General Classroom Bldg, 1601 E Market St, Greensboro, NC 27411, USA
      sug:
        subj:
          Attitude to Health Ethnology
          Research, Medical Ethical Issues
          Research, Medical
          Consumer Participation Psychosocial Factors
          Patient Selection Ethical Issues
          Research Subjects Psychosocial Factors
          Researcher-Subject Relations
          Adult
          African Americans
          Age Factors
          Aged
          Ethics
          Ethnological Research
          Educational Status
          White Persons
          Female
          Male
          Middle Age
          Prejudice
          Sex Factors
          United States
          Human
          Adult: 19-44 years
          Aged: 65+ years
          Middle Aged: 45-64 years
          Female
          Male
      ab: The health and well-being of all individuals, independent of race, ethnicity, or gender, is a significant public health concern. Despite many improvements in the status of minority health, African American males continue to have the highest age-adjusted mortality rate of any race-sex group in the United States. Such disparities are accounted for by deaths from a number of diseases such as diabetes, human immunodeficiency virus (HIV), cancer, and cardiovascular disease, as well as by many historical and present social and cultural constructs that present as obstacles to better health outcomes. Distrust of the medical community, inadequate education, low socioeconomic status, social deprivation, and underutilized primary health care services all contribute to disproportionate health and health care outcomes among African Americans compared to their Caucasian counterparts. Results of clinical research on diseases that disproportionately affect African American males are often limited in their reliability due to common sampling errors existing in the majority of biomedical research studies and clinical trials. There are many reasons for underrepresentation of African American males in clinical trials, including their common recollection and interpretation of relevant historical of biomedical events where minorities were abused or exposed to racial discrimination or racist provocation. In addition, African American males continue to be less educated and more disenfranchised from the majority in society than Caucasian males and females and their African American female counterparts. As such, understanding their perceptions, even in early developmental years, about health and obstacles to involvement in research is important. In an effort to understand perspectives about their level of participation, motivation for participation, impact of education, and engagement in research, this study was designed to explore factors that impact their willingness to participate. Our research suggests that: (1) African American males across all ages are willing to participate in several types of research studies, even those that require human samples; (2) their level of participation is significantly influenced by education level; and (3) their decision to participate in research studies is motivated by civic duty, monetary compensation, and whether they or a relative has had the disease of interest. However, African American males, across all age groups, continue to report a lack of trust as a primary reason for their unwillingness to participate in biomedical research. There is an ongoing need to continue to seek advice, improve communication, and design research studies that garner trust and improve participation among African American males as a targeted underrepresented population. Such communication and dialogues should occur at all age levels of research development to assess. current attitudes and behaviors of African American males around participation.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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