The ‘empty choice’: A sociological examination of choosing medical research participation in resource-limited Sub-Saharan Africa.
This article explores the views of frontline research staff in different Sub-Saharan African contexts on the notion of choice in biomedical research. It argues that the current emphasis on individual choice, in the conduct of biomedical research, ignores significant structural and contextual factors...
| Publicado en: | Current Sociology Vol. 63; no. 5; pp. 763 - 779 |
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| Formato: | Artículo |
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Sage Publications Inc.
Sep2015
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=108768260&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 108768260 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00113921 CSO jtl: Current Sociology issn: 00113921 maglogo: Y pubinfo: dt: Sep2015 vid: 63 iid: 5 pid: 344 pub: Sage Publications Inc. artinfo: ui: 108768260 10.1177/0011392115590093 ppf: 763 ppct: 16 formats: tig: atl: The ‘empty choice’: A sociological examination of choosing medical research participation in resource-limited Sub-Saharan Africa. aug: au: Kingori, Patricia affil: University of Oxford, UK su: Sub-Saharan Africa Informed consent (Medical law) Medical research Medical care Health policy Biological research sug: subj: Informed consent (Medical law) Medical research Medical care Health policy Sub-Saharan Africa Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology) Research and development in the physical, engineering and life sciences Administration of Public Health Programs Biological research keyword: África subsahariana Afrique sub-saharienne Choice choix consentement éclairé consentimiento informado elección frontline workers informed consent participación de investigación participation à une recherche research participation trabajadores de primera línea travailleurs de première ligne África subsahariana consentimiento informado elección participación de investigación trabajadores de primera línea Afrique sub-saharienne choix consentement éclairé participation à une recherche travailleurs de première ligne África subsahariana Afrique sub-saharienne Choice choix consentement éclairé consentimiento informado elección frontline workers informed consent participación de investigación participation à une recherche research participation trabajadores de primera línea travailleurs de première ligne África subsahariana consentimiento informado elección participación de investigación trabajadores de primera línea Afrique sub-saharienne choix consentement éclairé participation à une recherche travailleurs de première ligne ab: This article explores the views of frontline research staff in different Sub-Saharan African contexts on the notion of choice in biomedical research. It argues that the current emphasis on individual choice, in the conduct of biomedical research, ignores significant structural and contextual factors in resource-limited settings. These factors severely constrain individual options and often make biomedical research enrolment the most amenable route to healthcare for the world’s poorest. From the position of frontline research staff, local contextual factors and structural issues narrowly frame the parameters within which many prospective participants are asked to choose, to such an extent that individuals are effectively presented with an ‘empty choice’. The article draws on ethnographic and interview data and insights gained through graphic elucidation techniques. It demonstrates that for frontline research staff, macro-level structural factors and their bearing on everyday realities shape what choice in biomedical research participation means in practice. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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