Information preferences of the general population when faced with life-limiting illness.
Background: Giving the public and the patients good information enables them to make effective choices about their care. This study describes public preferences for both themselves and their relatives on receiving information on end-of-life care topics when faced with a life-limiting illness and to...
| Publicado en: | European Journal of Public Health Vol. 25; no. 3; pp. 532 - 539 |
|---|---|
| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Oxford University Press / USA
Jun2015
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=108935764&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 108935764 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 11011262 BHW jtl: European Journal of Public Health issn: 11011262 maglogo: N pubinfo: dt: Jun2015 vid: 25 iid: 3 pid: 622 pub: Oxford University Press / USA artinfo: ui: 108935764 108935764 109628373 10.1093/eurpub/cku158 108935764 ppf: 532 ppct: 7 formats: fmt: @attributes: type: P tig: atl: Information preferences of the general population when faced with life-limiting illness. aug: au: Vleminck, Aline De Pardon, Koen Roelands, Marc Houttekier, Dirk Block, Lieve Van den Stichele, Robert Vander Deliens, Luc affil: Family Medicine and Chronic Care, End-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Ghent, Belgium sug: subj: Information Seeking Behavior Health Information Truth Disclosure Terminally Ill Patients Psychosocial Factors Human Male Female Descriptive Statistics Data Analysis Software Confidence Intervals Odds Ratio Belgium Terminal Care Life Expectancy Aged Aged, 80 and Over Patient Attitudes Stratified Random Sample Cluster Sample Aged: 65+ years Aged, 80 & over Male Female ab: Background: Giving the public and the patients good information enables them to make effective choices about their care. This study describes public preferences for both themselves and their relatives on receiving information on end-of-life care topics when faced with a life-limiting illness and to identify associated factors. Method: This study used data from the cross-sectional Health Interview Study (HIS) 2008 that collected data from a representative sample (N= 9651) of the Belgian population. Results: Around 82% of respondents wanted to be informed always about diagnosis, chances of cure and available treatments, 77% wanted to be informed on life expectancy, 72% on options regarding palliative care and 67% on possibilities of prolonging or shortening life. Around 55%wanted their relative to be informed always about diagnosis, chances of cure, life expectancy and different treatments available, whereas 50% wanted this in relation to the options regarding palliative care and 46% on the possibilities of prolonging or shortening life. Younger adults, people with more education and people with a regular GP were more likely to want to be informed always. Younger adults and women were less likely to want their relatives to be informed always. Conclusion: The majority of the Belgian population wants to be informed always about end-of-life care topics when faced with a life-limiting illness. Physicians should be aware of the desired level of information and tailor information to individual patient preferences. Understanding population preferences may help to tailor patient education and health promotion programmes appropriately. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|