EpiReumaPt -- the study of Rheumatic and Musculoskeletal diseases in Portugal: a detailed view of the methodology.

Rheumatic and musculoskeletal diseases (RMD) are prevalent and a leading cause of disability and consumption of healthcare and social resources. EpiReumaPt is a national population-based survey developed by the Portuguese Society of Rheumatology that aimed to estimate the prevalence of RMDs and dete...

Descripción completa

Detalles Bibliográficos
Publicado en:Acta Reumatológica Portuguesa Vol. 40; no. 2; pp. 110 - 125
Autores principales: Silva, Inês, Rodrigues, Ana M., Canhão, Helena, Gouveia, Nélia, Branco, Jaime C., Mourão, Ana Filipa, Laires, Pedro, Ramiro, Sofia, Machado, Pedro, Araújo, Filipe, Coelho, Pedro Simões, Mendes, Jorge, Gonçalves, Sónia, Zhao, Ana, Tavares, Viviana, Silva, J. A. P. da, Barros, Henrique, Carmona, Loreto, Fonseca, João Eurico, de Almeida, J. M. Caldas
Formato: Artículo
Publicado: Sociedade Portuguesa de Reumatologia abr-jun2015
Materias:
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=lth&AN=109011521&site=ehost-live
header:
  @attributes:
    shortDbName: lth
    uiTerm: 109011521
    longDbName: MedicLatina
    uiTag: AN
  controlInfo:
    bkinfo:
    jinfo:
      jid:
        0303464X
        4Z1D
      jtl: Acta Reumatológica Portuguesa
      issn: 0303464X
      maglogo: N
    pubinfo:
      dt: abr-jun2015
      vid: 40
      iid: 2
      pid: 38819
      pub: Sociedade Portuguesa de Reumatologia
    artinfo:
      ui: 109011521
      ppf: 110
      ppct: 15
      formats:
        fmt:
          @attributes:
            type: P
            size: 1MB
      tig:
        atl: EpiReumaPt -- the study of Rheumatic and Musculoskeletal diseases in Portugal: a detailed view of the methodology.
      aug:
        au:
          Silva, Inês
          Rodrigues, Ana M.
          Canhão, Helena
          Gouveia, Nélia
          Branco, Jaime C.
          Mourão, Ana Filipa
          Laires, Pedro
          Ramiro, Sofia
          Machado, Pedro
          Araújo, Filipe
          Coelho, Pedro Simões
          Mendes, Jorge
          Gonçalves, Sónia
          Zhao, Ana
          Tavares, Viviana
          Silva, J. A. P. da
          Barros, Henrique
          Carmona, Loreto
          Fonseca, João Eurico
          de Almeida, J. M. Caldas
        affil:
          EpiReumaPt Study Group -- Sociedade Portuguesa de Reumatologia, Lisboa, Portugal
          Serviço de Reumatologia do Hospital Egas Moniz -- Centro Hospitalar Lisboa Ocidental (CHLO- E.P.E.), Lisboa, Portugal
          EpiDoc Unit -- Unidade de Epidemiologia em Doenças Crónicas (CEDOC, NMS/UNL), Lisboa, Portugal
          Unidade de Investigação em Reumatologia, Instituto de Medicina Molecular, Lisboa, Portugal
          Faculdade de Medicina da Universidade de Lisboa, Lisboa, Portugal
          Serviço de Reumatologia do Hospital de Santa Maria -- Centro Hospitalar Lisboa Norte (CHLN-E.P.E), Lisboa, Portugal
          Centro de Estudos de Doenças Crónicas (CEDOC) da NOVA Medical School, Universidade Nova de Lisboa (NMS/UNL), Lisboa, Portugal
          Programa Nacional Contra as Doenças Reumáticas (2006-2014), Direcção-Geral da Saúde. Lisboa, Portugal
          Department of Cell Biology, New York University Medical Center, New York, New York, U.S.A
      su:
        Musculoskeletal system diseases
        Health surveys
        Medical screening
        Epidemiology
        Biobanks
        Portugal
      sug:
        subj:
          Portugal
          Musculoskeletal system diseases
          Health surveys
          Medical screening
          Epidemiology
          Biobanks
      keyword:
        EpiReumaPt
        Methodology
        Rheumatic diseases
        Study design
      ab: Rheumatic and musculoskeletal diseases (RMD) are prevalent and a leading cause of disability and consumption of healthcare and social resources. EpiReumaPt is a national population-based survey developed by the Portuguese Society of Rheumatology that aimed to estimate the prevalence of RMDs and determine their impact on function, quality of life, mental health and use of healthcare resources. This article describes in detail the design, methodology and planned analyses of EpiReumaPt. Recruitment started in September 2011 and finished in December 2013. This study involved a three-stage approach. The first step was a face-to-face survey performed by trained interviewers at the household of 10,661 subjects, who where randomly selected by a stratified multistage sampling. A highly sensitive screening questionnaire for RMDs was used. Secondly, participants who screened positive (64%) for at least one RMD, as well as 20% of individuals with a negative screening, were invited for assessment by a rheumatologist. In total, 3,877 subjects participated in this second phase, where they were also invited to donate a blood sample to be stored at the Biobanco-IMM. History and physical examination, followed by appropriate laboratory and imaging tests were performed. At the end of the visit, the rheumatologist established a diagnosis. Finally, a team of three experienced rheumatologists reviewed all the clinical data and defined the diagnoses according to previously validated criteria. The EpiReumaPt dataset, containing data from several questionnaires, various clinical measurements and information from laboratory and imaging tests, comprises an invaluable asset for research. The large amount of information collected from each participant and the large number of participants, with a wide age range covering and being representative of the adult population from the entire country, makes EpiReumaPt the largest study of RMDs performed in Portugal.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
    refInfo:
    copyright:
      @attributes:
        flag: Y
      custom: Copyright of Acta Reumatológica Portuguesa is the property of Sociedade Portuguesa de Reumatologia and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use.
      item: Acta Reumatológica Portuguesa
      holder: Sociedade Portuguesa de Reumatologia
      dt:
        @attributes:
          year: 2015
    holdings:
      @attributes:
        islocal: N