"Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the 'Watch Me Grow' study.
Background: Universal developmental surveillance programs aimed at early identification and targeted early intervention significantly improve short- and long-term outcomes in children at risk of developmental disorders. However, a significant challenge remains in providing sufficiently rigorous rese...
| Publicado en: | BMC Pediatrics Vol. 14; no. 1; pp. 234 - 235 |
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| Autores principales: | , , , , , , , , , , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
BioMed Central
2014
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=109680801&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 109680801 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 14712431 1CIE jtl: BMC Pediatrics issn: 14712431 maglogo: N pubinfo: dt: 2014 vid: 14 iid: 1 pid: 24147 pub: BioMed Central artinfo: ui: 109680801 109680801 NLM25241772 2012759156 10.1186/1471-2431-14-234 NLM25241772 PMC4190387 109680801 ppf: 234 ppct: 1 formats: tig: atl: "Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the 'Watch Me Grow' study. aug: au: Eapen, Valsamma Woolfenden, Susan Williams, Katrina Jalaludin, Bin Dissanayake, Cheryl Axelsson, Emma L Murphy, Elisabeth Eastwood, John Descallar, Joseph Beasley, Deborah Crncec, Rudi Short, Katherine Silove, Natalie Einfeld, Stewart Prior, Margot Črnčec, Rudi sug: subj: Child Development Developmental Disabilities Prevention and Control Australia Infant Risk Factors Human Infant, Newborn Developmental Disabilities Diagnosis Prospective Studies Comparative Studies Multicenter Studies Evaluation Research Validation Studies Short Portable Mental Status Questionnaire Arthritis Impact Measurement Scales Ferrans and Powers Quality of Life Index Infant: 1-23 months Infant, Newborn: birth-1 month ab: Background: Universal developmental surveillance programs aimed at early identification and targeted early intervention significantly improve short- and long-term outcomes in children at risk of developmental disorders. However, a significant challenge remains in providing sufficiently rigorous research and robust evidence to inform policy and service delivery. This paper describes the methods of the 'Watch Me Grow' study that aims to maximise accurate early detection of children with developmental disorders through a partnership formed between policy makers, service providers and researchers.Methods/design: A mixed methods study design was developed consisting of: (1) a qualitative study of parents and health service providers to investigate barriers and enablers of developmental surveillance; (2) recruitment of a birth cohort and their longitudinal follow-up to 18 months of age to: a) assess risk factors for not accessing existing developmental surveillance programs and b) estimate the prevalence of children identified with developmental risk; (3) comparison of surveillance outcomes with a reference standard at 18 months of age to assess the diagnostic test accuracy of existing and alternative developmental surveillance tools; and (4) comparison of developmental surveillance models to inform policy recommendations. Data linkage will be used to determine the uptake and representativeness of the study participant group versus non-participants.Discussion: The Watch Me Grow study is expected to provide a collaborative opportunity to enhance universal developmental surveillance for early accurate identification of developmental risk. This will also provide quality evidence about identification of developmental risk and access to services to be embedded in existing practice with linkages to policy development. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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