Data collection challenges in community settings: insights from two field studies of patients with chronic disease.
Purpose: Collecting information about health and disease directly from patients can be fruitfully accomplished using contextual approaches, ones that combine more and less structured methods in home and community settings. This paper's purpose was to describe and illustrate a framework of the challe...
| Publicado en: | Quality of Life Research Vol. 24; no. 5; pp. 1043 - 1056 |
|---|---|
| Autores principales: | , , , , |
| Formato: | research Journal Article |
| Publicado: |
Springer Nature
May2015
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=109782067&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 109782067 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: May2015 vid: 24 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 109782067 NLM25154464 2012976932 10.1007/s11136-014-0780-y NLM25154464 PMC4342308 109782067 ppf: 1043 ppct: 13 formats: fmt: @attributes: type: P tig: atl: Data collection challenges in community settings: insights from two field studies of patients with chronic disease. aug: au: Holden, Richard J McDougald Scott, Amanda M Hoonakker, Peter L T Hundt, Ann S Carayon, Pascale sug: subj: Chronic Disease Health Services Research Methods Consumer Participation Self Report Adult Focus Groups Human Male Quality of Life Reproducibility of Results Adult: 19-44 years Male ab: Purpose: Collecting information about health and disease directly from patients can be fruitfully accomplished using contextual approaches, ones that combine more and less structured methods in home and community settings. This paper's purpose was to describe and illustrate a framework of the challenges of contextual data collection.Methods: A framework is presented based on prior work in community-based participatory research and organizational science, comprised of ten types of challenges across four broader categories. Illustrations of challenges and suggestions for addressing them are drawn from two mixed method, contextual studies of patients with chronic disease in two regions of the USA.Results: The first major category of challenges was concerned with the researcher-participant partnership, for example, the initial lack of mutual trust and understanding between researchers, patients, and family members. The second category concerned patient characteristics such as cognitive limitations and a busy personal schedule that created barriers to successful data collection. The third concerned research logistics and procedures such as recruitment, travel distances, and compensation. The fourth concerned scientific quality and interpretation, including issues of validity, reliability, and combining data from multiple sources. The two illustrative studies faced both common and diverse research challenges and used many different strategies to address them.Conclusion: Collecting less structured data from patients and others in the community is potentially very productive but requires the anticipation, avoidance, or negotiation of various challenges. Future work is necessary to better understand these challenges across different methods and settings, as well as to test and identify strategies to address them. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|