Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention.
Introduction: Few studies have evaluated interventions to improve quality of life (QOL) for Latina breast cancer survivors and caregivers. Following best practices in community-based participatory research (CBPR), we established a multi-level partnership among Latina survivors, caregivers, community...
| Publicado en: | Quality of Life Research Vol. 24; no. 5; pp. 1107 - 1119 |
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| Autores principales: | , , , , , , , , , , , , , , |
| Formato: | research randomized controlled trial Journal Article |
| Publicado: |
Springer Nature
May2015
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=109782076&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 109782076 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: May2015 vid: 24 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 109782076 NLM25377349 2012976940 10.1007/s11136-014-0847-9 NLM25377349 PMC4405404 109782076 ppf: 1107 ppct: 12 formats: fmt: @attributes: type: P tig: atl: Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention. aug: au: Rush, Christina L Darling, Margaret Elliott, Maria Gloria Febus-Sampayo, Ivis Kuo, Charlene Muñoz, Juliana Duron, Ysabel Torres, Migdalia Galván, Claudia Campos Gonzalez, Florencia Caicedo, Larisa Nápoles, Anna Jensen, Roxanne E Anderson, Emily Graves, Kristi D sug: subj: Breast Neoplasms Caregivers Education Health Education Methods Consumer Participation Quality of Life Community Networks Health Services Research Female Hispanic Americans Human Self Care Survivors Female ab: Introduction: Few studies have evaluated interventions to improve quality of life (QOL) for Latina breast cancer survivors and caregivers. Following best practices in community-based participatory research (CBPR), we established a multi-level partnership among Latina survivors, caregivers, community-based organizations (CBOs), clinicians, and researchers to evaluate a survivor-caregiver QOL intervention.Methods: A CBO in the mid-Atlantic region, Nueva Vida, developed a patient-caregiver program called Cuidando a mis Cuidadores (Caring for My Caregivers), to improve outcomes important to Latina cancer survivors and their families. Together with an academic partner, Nueva Vida and three CBOs established a multi-level team of researchers, clinicians, Latina cancer survivors, and caregivers to conduct a national randomized trial to compare the patient-caregiver program to usual care.Results: Incorporating team feedback and programmatic considerations, we adapted the prior patient-caregiver program into an 8-session patient- and caregiver-centered intervention that includes skill-building workshops such as managing stress, communication, self-care, social well-being, and impact of cancer on sexual intimacy. We will measure QOL domains with the patient-reported outcomes measurement information system, dyadic communication between the survivor and caregiver, and survivors' adherence to recommended cancer care. To integrate the intervention within each CBO, we conducted interactive training on the protection of human subjects, qualitative interviewing, and intervention delivery.Conclusion: The development and engagement process for our QOL intervention study is innovative because it is both informed by and directly impacts underserved Latina survivors and caregivers. The CBPR-based process demonstrates successful multi-level patient engagement through collaboration among researchers, clinicians, community partners, survivors, and caregivers. pubtype: Academic Journal doctype: research randomized controlled trial Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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